thankful thursdays 5/25

May 25, 2017

I met with my geneticist, Dr. Ball, at Primary Children’s Medical Center, on Monday. It is a pretty big deal to meet with him. It is a big deal emotionally, physically, and mentally and I’m still recovering days later. It’s time to take some time to focus on gratitude.

• I’m grateful there is a geneticist in the intermountain west who knows EDS inside and out.
• I’m grateful Kez and Dallin took me down to SLC and listened to me go round and round about how maybe the whole thing is in my head. They may have laughed at me, but they listened and helped me sort through the tangled web of thoughts running on repeat in my mind.
• Sunshine is feeding my soul. Oh my goodness, I love the sun streaming through my windows, shining down on my body, and glistening through the trees.
• Dallin. This young man has my heart. He is Keziah’s best friend and we love him. His goodness brings me so much joy.
• We had a crazy windstorm on Wednesday and lost hundreds of branches and one big tree. I’m so grateful nothing came through our windows or roof or smashed our cars.
• I can feel the stem cells kicking in and energy is starting to increase a wee bit every day. I’m still super exhausted, but I can feel a difference and others are seeing a difference.
• My dear Richard. He is working so hard, so many hours trying his darndest to make ends meet and to take care of all of us. He comes home wiped out, but still plays catch with the kids, does laundry, cooking, or whatever else needs done, and most of all, he loves us. He is almost done with the school year and it will be so, so good for him to have a bit of a break.