some answers and some questions

Feb 4, 2013

We are getting a few answers. My doctor has determined that I had an allergic reaction to the Procaine in the Prolozone injection I received on the 8th. It makes sense since my symptoms started immediately following the injection. Some of the known reactions to Procaine are tremors and passing out, which are exactly what I experienced.

But now, I don’t know what to do going forward. I need these injections to heal my hip. Surgery is not an option for a variety of reasons, the biggest one being it most likely will not work because of my ligament laxity. We also don’t really know what my outlook is with Ehlers-Danlos syndrome or even if I really have it. I do meet the diagnostic criteria and it does seem to match my life history pretty well, but I don’t have a family history of it and as it is an autosomal dominant genetic disorder, one of my parents and/or grandparents should have symptoms as well. I have read so much on Ehlers-Danlos and I don’t like any of it. Part of me wants to become an expert on it and part of me wants to go on my merry way ignoring the very real possibility that I have a lifelong degenerative disorder that isn’t going to get any better no matter what I do.

On the up side, I am feeling much stronger today and my heart seems to be settling down after its craziness the last two weeks. I had acupuncture and a variety of other treatments over the weekend and am hoping the treatments will be the beginning of healing.

Other good news? The yard is full of snow and the two littles are having a blast sledding, Blythe starts piano this week and restarts violin lessons with a fabulous new-to-us teacher, we finished our read-aloud of Mama’s Bank Account and started our next book, The Land of The Blue Flower, and I’ve almost got our taxes done.

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  1. I know allergies can crop up at any time, but does anyone have any ideas as to why you suddenly decided to be allergic to the procaine? Procaine is simply a numbing agent, is it actually mixed in the injection itself? Is there a way to leave it off/out?

    I did not know you weren’t sure about EDS, genetic disorders can skip generations. And even if they don’t seem to, genetic disorders have to start somewhere and with somebody.

    I’m glad your heart is better. What can I do for you?

    • tracy

      Wayne believes I developed an allergy to the Procaine over time…over the previous eight injections. He doesn’t know yet if I will be able to have them again in the future. We will have to see how my body responds to the allergy work he did with me.

      The Procaine is an essential part of the injection ingredients…it is supposed to reset the nervous system and help the nerves to heal.

      I am not sure about EDS because I don’t fit all the criteria…and Dr. Nelson surely isn’t qualified to make a diagnosis. If I want a real diagnosis I probably need to go to a geneticist. It seems like a big step to say I have EDS…to own that and make it part of me by admitting it. I have known for years that I have a connective tissue disorder, but to give it a name makes it so much more real to me. I don’t know, I am probably just being silly, but I am not ready to say I am 100% sure I have EDS.

      Can genetic disorders just start with someone out of the blue?

      My heart is improving every day…priesthood blessings are amazing!

      Somehow I need to pull together some amazing lessons plans for iFamily this afternoon. I am always amazed how long it takes me.

      • Can genetic disorders just start with someone out of the blue?

        From my limited understanding, they can seem to, maybe from a compilation of genetic triggers over time, through generations that leads to one individual being more prone to developing the issue, or being born with the issue – or a right combination of the genetic factors from two parents. But take that with a grain of salt, it’s been years since I did any studying on that topic in nursing school.

  2. Anne

    Tracy, did you get my email?

  3. Liz

    Hi Tracy- since it has been a year now that you’ve been living with the hip pain, have you thought about an anniversary of sorts – a re reading of your journal for that day and possibly a meditation on what that day’s activities were about in your heart, mind and body…..the body really listens to us but expects and hopes to be listened to as well…..maybe there is some kind of answer for you there. I hope so- the very best wishes to you and your family…….

    • tracy

      An anniversary? Now, there is an idea! I think I would like to have a sacred, meditation time to honor and listen to my body, and also a PARTY! I am a party kind of girl and I think we should celebrate the joys and sorrows of the past year. Hmmm, I am going to ponder this idea and see what I come up with.

      February 20th is coming up lickety split.

      • I am ALL for a party.

        Is that Liz ‘my Liz’ who comments on BE? That sounds like a Liz A. comment :o)

        • tracy

          Yes, it is Liz A.! I have been enjoying her wise, encouraging words for quite some time now. What a gem, that one!

          What are your party ideas? It’s so HIP to be square? What other hip-py themes could we do?

          • Isn’t she lovely? Hi Liz!

          • How about a hippie party? Kat would be thrilled. We could all come in bell bottoms or patchwork skirts, and flower headbands.

  4. Charlene

    Don’t let the EDS scare you, but I would also encourage you to find out if you can. It is possible that it is in your family but no one has had it bad enough for it to be visible, it’s also possible that you don’t have it at all. If you do have it though, there are a few things you can have doctors watch for that can really change your life during your later life. It’s scary, I know.

  5. Liz

    How about hip hip hooray!! say it first thing in the morning and last thing at night……..anyway, you are lovely girls I wish you both all good things. :)