drat it all, i scare people

Jun 13, 2014

We had a frustrating, disappointing, hilarious, and a lil’ bit crazy day yesterday when I went to Dr. Guinn to get an expert opinion on my jaw.

He decided he wouldn’t treat me as there are vagus nerve issues involved and instead recommended I go to the emergency room. He wants me to see a neurologist, but recommended the emergency room as my first stop, saying “They’ll know what to do with you.” He actually asked if I have a death wish and want my children to be raised without a mother.

Oh my word.

At the time I couldn’t decide whether to explode in any angry diatribe or laugh hysterically. I did a little of both after we left the office.

Now that I have had a day to think about it, I feel compassion for the poor man. He was probably scared out of his mind that I would pass out right there in his office and somehow die from his dental exam.

After a delicious milk shake at Smash Burger with Richard, Jessica, Kat, Tami, my sister Mikelle, and my mama and phone calls to my dentist and PT, I was able to calm down and start to think through my options.

I have researched neurologists, geneticists, and all sorts of other ists all day long and don’t see any good solutions. There are some excellent EDS doctors out there, but oh, my goodness, there are long 12 – 18 month waiting lists and long distance travel to Maryland, Illinios, Texas, or Seattle are involved.

We have some big decisions in front of us and it doesn’t look like my jaw OR vagus issues will be resolved anytime soon.

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  1. I don’t know what to think of this post. Your situation is scary. That doctor, Dr. Grimm was scary. The witch doctor was kind of scary. Your car was a tiny bit scary. Salt Lake traffic is scary. But you? Not so much. I did some research and found out that Dr. Grimm is a second cousin to that guy in Pocatello. A pair of fools, they are!

  2. I am up for a cross country road trip as long as you don’t spring it on me the day of at 5:00 in the morning.

    That appointment was banana cakes. I feel like he is a hopefully sweet old man who was terrified of a law suit and felt out of control in that he couldn’t help you, and also clearly believes in the system. I wish him the best, but wish he would have phone consulted with you before you drove all the way there.

    Did you get a chair?

  3. Melissa

    I’ve been thinking of you. Sorry to hear about your last visit to Utah. Unreal! Man Tracy, I sure hope one of these doctors can give you some good news soon! You are a trooper and one of my heroes! Love you!!