lightning

Apr 17, 2021 by

I’m part shrieking with joy and part welling up with tears.

You guys!!! I just played Lightning with Fisher and Annes! I don’t think I’ve ever played basketball with them. They were 4 and 7 when I was injured and really 3 and 6 when I stopped being the fun, active mom my older children knew because I had a lump in my breast the year before I was injured and with the treatments and surgery, I couldn’t do hardly anything fun that year.

I was working. Annes came in and asked, “Mom, do you think you could play Lightning with us? I thought about it, wondering if my body really could do it or not. I knew I could slip and roll my ankle or injure my knee or dislocate my shoulder by shooting, but I checked in with my body and decided, yes, I think I can handle it. Then I had to check in with my heart. A big part of me wanted to keep working and finish what I was doing. And then this other part of me yelled, “Get up and go play with your kids! They are asking you and this is a beautiful opportunity to be WITH them. Do it!”

When I said, “Yes,” she screamed, “Really? Really? You’ll play????”

So I did. And we laughed and ran and shot and breathed hard and I even won once! At one point I made three free throws in a row!

SO FUN!

I hope we do it more often. Maybe a nightly ritual? Surely at least weekly. And I hope they always remember this joyous moment in time of this first game. Day by day, they are getting more light in their eyes and joy in their hearts as they see their mama and papa getting stronger and healthier and more capable. They pretty much gave up all their hope last year when Richard was diagnosed with a brain tumor. It was just too much for them to face their mama having EDS with years of injuries and passing out and then their papa to face such an unknown future. But every little bit of progress we make lifts their spirits and helps them see life is full of hope and miracles.

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one year since carl’s eviction

Feb 27, 2021 by

One year ago today we walked into the University of Utah hospital to evict Carl, the vestibular schwannoma that invaded Richard’s brain and was compressing his cerebellum and brain stem. This type of brain tumor happens in .001% of the population. Such crazy odds that this would ever happen to anyone and yet, our lives seem to be full of extremely rare happenings, so this probably shouldn’t have shocked us so thoroughly!

This year has been dang hard and deliciously sweet. We have learned powerful lessons of deliverance, poured our hearts out to God, been carried by our friends and family, fallen in love more deeply, laughed hard, cried hard, hurt more than we ever imagined, spent more time together than we ever have before, and are slowly figuring out our new life.

That day was full of trepidation, fear, and a whole lot of faith. This day is full of awe and gratitude.

That day we couldn’t see how God’s promises could possibly be fulfilled. This day we stand as witnesses that He is mighty to save – that He can and does work miracles of deliverance in our lives.

That day we didn’t know if Richard would be able to walk again. This day we are thrilled that he can walk and ride his trike and cast his fishing line into a stream.

That day we had no idea how we would pay our bills. This day we cry tears of gratitude at the generosity of so many who reached out and rescued us. We are so grateful for the Go Fund Me and many private donations that paid our living expenses for several months and removed that burden and worry from our minds.

That day we didn’t know if Richard would ever be able to work again. This day we rejoice that while his abilities have changed and his endurance is much lower, he is able to work.

That day we didn’t know what work I would be able to do to provide for our family. This day we are amazed at how God has worked out all those details and shown me how to help people with their gut health, change their lives for the better, AND stay home with our children.

That day we didn’t know how our children would handle the stress of their father having brain surgery. This day we know they are strong and brave and while it has been an incredibly hard road for them, we are so, so grateful they have each navigated through big emotions and come out the other side with a deeper knowing of who they are and who He is.

That day we didn’t know if our hearts would ever recover from losing Saylor and Stella. This day we still don’t know and we hold each other tightly and cry on a regular basis for our precious babies.

That day we had no idea how many people in our lives would have brain tumors. This day we are full to the brim with gratitude that we have been able to reach out and help so many others on their own brain tumor paths.

That day I felt like I might die under the weight of what I was carrying. This day I’m better able to give that weight to God…still learning.

I’m grateful for this year. We have spent more time together as a family than we ever have before. We have laughed and played and loved and cried and prayed. We have learned more about suffering and more about joy. We have been tutored by the God of the Universe. We have been loved deeply and well by hundreds. We have been carried.

Thank you for walking this journey with us. You have no idea how much your love has done to lift our hearts and fuel us with courage to keep moving forward.

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thankful thursdays 2/18

Feb 18, 2021 by

Today is a good day. A tender day. A day my mind is drawn back to nine years ago on February 17th, 2012 when I was able to run and do back handsprings and had no idea what was coming in the next few days. Today my heart is full of gratitude for all of it. I know I have some amnesia regarding the pain and the anger and the sheer hardness of it all, but my heart is full of gratitude nonetheless.

  • I’m grateful for the opportunity to experience exquisite pain and see that it’s possible to come out the other side. Many times I didn’t know if that was possible. But now I do and that knowledge will strengthen me forever.
  • I’m grateful for the love that has been showered down upon us regularly. I cannot adequately describe how much the notes and hugs and meals and money and smiles and encouragement have done to carry us through.
  • I’m grateful for stem cells – what a gift these have been in my life. They have helped my body heal from so-called unhealable injuries and given me hope of having functional life again.
  • I’m grateful for Tami, who has taken me to Mexico fifteen times. I would not have been able to go without her. Her sacrifice for me can never be repaid. Every time you see me living and doing think of her and how she took care of me trip after trip.
  • I’m grateful for Plexus. These supplements have helped my body feel like me again. Priceless!
  • I’m grateful for the utter desperation that drove me to God because I had no where else to turn. My relationship with Him is sweet and soul-filling and completely worth the hard.
  • I’m grateful for my friends and family who have been there for us each step of this journey. So many times I had nothing more to give to this fight and someone would show up with a hug or a smile or a plate of cookies or a meal or money for treatments and my courage would be refueled. Thank you, thank you, thank you to each of you who have lifted and loved us along this journey.
  • I’m so grateful for our children. They have had to do hard things, face big fears, and carry a big part of the workload. They are each remarkable humans and I’m so grateful for their courage and tenacity and love and patience. May they always know how dearly I love them.
  • Last of all, I’m grateful for Richard. This man, oh, there are no words to describe how good and strong and kind he is. He has loved me without frustration and served without even a hint of complaint…and instead serves me with joy. He has cried with me, held me, cheered me on, and helped me stay sane. He is my superhero and my dearest friend. Oh, I love him!

Tomorrow I’m thinking of trying to do a back handspring at gym to commemorate the day. I just don’t know if I dare.

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thankful thursdays 2/4

Feb 4, 2021 by

Today is gloomy: overcast, cold, and full of a big to-do list. I don’t love to-do lists. They feel restrictive for this carpe-diem loving soul of mine. I got on here to update the Swim Camp Registration page and read through a few posts and remembered how dear this space is to me. I’d like to rekindle it and I think I’ll start by focusing on Thankful Thursdays once again.

  • I reread Charlotte’s Web this week for the umpteenth time. Oh, my goodness, I love this book. The simple days in the barn, tranquil days of childhood, Wilbur’s pure soul, and Charlotte’s rescue of his life always bring me joy. Last night as I finished the last little bit and Charlotte died and her children were born and then flew away, I cried and cried. I’m so grateful for this beautiful story of friendship, childhood, and wonder.
  • I’ve been rereading a biography of Harriet Beecher Stowe for a while now for my WUBA class. Oh, how I love this woman! Her courage, tenacity, and faith inspire me to live more fully and with more dedication. Her book changed the course of America and I’m forever grateful for her writing of Uncle Tom’s Cabin.
  • Speaking of WUBA, oh, it’s such a privilege to mentor my students! They blow me away with their humor, goodness, and determination to learn and grow as scholars.
  • Today I’m really grateful for a warm home, food, and working vehicles. One of our vehicles broke down today and while I’m hoping it isn’t a huge deal, I’m just so grateful to have other vehicles that are working.
  • I’m grateful for the everyday moments with our children. Fisher asking me to help him with something, writing papers with Annesley, hearing them laugh, or Annes coming in for morning snuggles, oh, I love these little moments of connection. I’m so grateful for each of our children and as they grow, I feel like every moment gets more precious.
  • We gave Annesley a ukulele for her birthday in November. She plays and plays and plays. Our home is full of music again! Ever since Blythe moved out, I have been missing her music. It is so wonderful to hear Annesley create magic with her voice and strumming!
  • Back in October I started reading to my mom most nights. I’m so grateful for the nightly check-in and that she wants me to share our family read-aloud time with her.
  • Today is World Cancer Day. My mom was diagnosed with bladder cancer on September 30. A few weeks later we found out it was high-grade. It gutted me. She has completed her first round of treatment and is doing really well. Soon we will find out how her body responded and if the cells are still multiplying rapidly or if her body is winning the battle. I’m so grateful she is thriving spiritually and emotionally and nourishing her body physically – giving it all sorts of fantastic stuff to kick cancer to the curb.

Time to get to work on taxes and laundry and Uncle Tom’s Cabin. I really need to leave my house and run errands today, but it’s so dreary, I think I’ll just keep working on my big to-do list here at home.

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can and do are two different things

Jan 30, 2021 by

Laughing SO hard right now.

Richard: (comes in with a sheepish look on his face) I’m wondering about this mystical grocery list Annesley says you have????

Me: (giggling) What is that look on your face?

Richard: Well, Annesley told me you have a list, but I just can’t imagine that is true and I don’t want to make you feel bad by asking about it.

Me: (full blown laughter) I DO! Here it is!

Richard: WHAT? You actually made a list?

Me: Yes! Here you go!

Richard: (completely dumbfounded) Wow, this is some serious organization.

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i feel good, nananananana

Jan 30, 2021 by

Yesterday I played at gym. Like really, really played for a solid two minutes! I jumped around while playing beanbag catch with Hannah, one of my gymnastics teachers. We laughed so hard. And it felt sooooooo good. I think it might be the first time I have felt the freedom in my body to actually let loose and let the old me out to play.

I love the new me. I miss the old me. I’m feeling a merging of the two coming. And boy, howdy, it feels good. Can you hear James Brown singing in the background?

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