let’s build muscles…not mine yet

Mar 5, 2015 by

I have known I was hypermobile my whole life…not in a diagnosable sort of way, but in a “look, how cool I am, I can bend in half” sort of way. I knew my ankles rolled really easily and were sprained more often than not. I knew that to compete in gymnastics or play volleyball or basketball, I needed my ankles to be taped. I knew when I had shoulder surgery 20 years ago that the surgeon had to cut off 90% of the ligament before it would hold my shoulder joint in place properly. I knew he said I would never be able to have children because of my unstable, hypermobile pelvis. I knew he diagnosed me with Mixed Connective Tissue Disease with Ligamentous Laxity. But I didn’t really know what a big challenge hypermobility was until the past three years.

And maybe I still don’t.

Even though I am living this experience of constant sprains, tears, broken bones, nervous system dysfunction, and pain, I still don’t really know what is coming or what this really means for me or my hypermobile children.

A few days ago, I had to drive myself to PT because Blythe was at work and I didn’t feel like I should bother ask any of my friends to take me, so I decided to take Fisher with me and have a little date with him (big mistake…driving still hurts a whole bunch…but it was lovely to spend some on-on-one time with my boy). While we were there, I asked Fisher to sit in butterfly position so Jeremy could see how flexible his hip joints are. Then Jeremy asked him to W-sit and upon seeing Fisher’s legs flop flat on the floor without pushing or straining in any way, he agreed with me that he is extremely hypermobile as well. I already knew that – I have eyeballs and can see my children walking with their toes folded underneath their feet and their hands and feet touching during backbends – but it was interesting to hear it pronounced from a medical professional.

While I know that my super-strong-gymnast muscles were my strongest defense in preventing injuries and the only reason my body was able to carry and birth our four beautiful babies and make it to 37 years of age before I started falling apart, I didn’t really know deep down in my little toes ENOUGH to do something about it. I have certainly thought about it a lot and hoped my children were getting enough exercise at gymnastics and riding bikes and running around in the yard and going to Irish Dance classes, but I didn’t think about it enough to make a plan to build their muscles.

But now I know and we are making a plan to give them the best shot at holding together for long past 37.

Jeremy said “Tracy, from what I have seen of your children, they all have it and they all need muscles. Lots of muscles. Way more muscles than they currently have. You need to start a family exercise regimen to build their cores with lots of stability exercises, muscle control, and muscle building.”

His words have been playing in my mind for the past few days. I can’t stop thinking about them and what we need to do. When I think about how many sit-ups and push-ups I did as a gymnast and how much good those thousands of exercises did for me, my eyes well up with tears. I am positive that the crunches, laps, sports, running, biking, and hiking that I used to participate in are what gave me the last twenty fairly injury-free years of my life. My children need at least as much muscle strength as I had so they have a good shot at life as well.

Now that I know, really know, deep down in my toes, I am brainstorming ways to build their muscles on a daily basis. Today Kez finished her two trimesters of seminary for the year, so our daily schedule is about to change again and I am working on a great plan to use that early morning time to build muscles.

We will be utilizing our awesome Elliptigo and our DDP Yoga videos as well as my balance pads and resistance bands. I am still on a no-exercise protocol until the inflammation from the car accident calms down some more (How on earth has it not calmed down????? I have even given in and am taking 2400 mg. of ibuprofen every day!) so I cannot exercise with them, but I am hoping Richard will be able to or they will be able to do it with one of the big girls directing them.

Jeremy strong recommended martial arts, so I am thinking about that, and also considering a weekly swimming trip, trying to figure out family bike rides (again, I can’t ride), and trying some exercise videos from the library.

I don’t know why it has taken me three years to think about this enough to actually do something about it, but it has. If you have some kid-friendly muscle-building tips, send them my way!

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three years

Feb 20, 2015 by

I remember the snow lightly falling on my nose as I warmed up my body with lunge walks, butt kicks, and grapevines. I remember feeling strong, capable of doing anything I set my mind to, and full of excitement for a summer full of races with my girlie. I remember running on Friday, the 17th, down at the greenbelt, with the sun shining – I ran further and faster and could actually see myself as a runner instead of just a mother of a runner.

I remember the take-my-breath-away pain deep in my groin as I brought my right leg forward. I remember feeling like an at-the-hip amputation would be better than the pain I was feeling. I remember hobbling back to the Suburban bringing my leg forward with my hands. I remember Richard carrying me to bed that night when I couldn’t put any weight on my leg at all.

I remember the weeks spent in bed covered in ice packs and the neverending pain of both body and spirit. My children fighting, crying, whining, unable to cope with mom spending day after day in bed. I remember sobbing myself to sleep many a night and being completely frustrated at my body, my situation, and my children.

I remember the first Priesthood blessing and how the heavens opened and poured love, light, and power into every fiber of my being. I remember the beginning of my family history journey and how insatiable my desire was to find each member of my family.

I remember the army of friends who brought in meals, cleaned my house, drove my children to activities, sent me cheer-up notes, prayed for me, and surrounded me with love.

I remember Kat, Jenn, and Jess taking care of me – gently helping me see reality, laughing, driving me to appointments with doctors, holding my hand as needles were inserted, holding my whole body as I sobbed all the pain and frustration out into a pile of snot. Kat and Jess went the extra mile and cleaned up my very stinky, post-MRA pee.

I remember the patient, calm, nurturing of my husband. I remember spending my days alone in my bed feeling completely broken and like a burden and failure. And then he would come home and give me that look. And my heart would fill up with a little bit of hope and a pile of love for this man who loves me more than life itself.

So many memories of those first few months, I want to remember forever – those were hard, hard days – too precious to forget.

Now it has been three years since that first day of pain and injury. Three years full of hundreds of little injuries and lots of big injuries. Three years full of more pain than I can describe. Three years of our children learning to be self-sufficient, run a household, take care of each other, and take care of me. Three years of learning to rely on God and submit to His will for my life. Three years full of the miracles of God, prayers answered, blessings poured out upon us. As hard as it has been, I am grateful for this experience – the pain, despair, and agony of soul AND the love, service, and joy. It has all been a powerful blessing for our whole family and many others as well.

Last night I showed this movie to Richard and with tears in my eyes, thanked him for all the work he does both behind the scenes and in full view that allows me to stil have a somewhat independent life. Tonight we are celebrating by watching Unbroken…for that is what we are, unbroken, full of faith, and determined to make it through.

I sent this thank you out to hundreds of people this morning. I share it here so that all my blog readers can know how grateful I am for you as well. Thank you for walking this journey with me and sending me so many words of encouragement. They have lifted me more than you know.

Dear Loved Ones,

Today, February 20, marks the 3-year anniversary of my original hip injury. I could spend today mourning all the freedom and body functions I have lost, but instead I want to celebrate and focus on the many blessings that have come from that injury. I want to pay tribute and give thanks to each of you – the many family members and friends whose support has meant so much during the last three years. We are surrounded by an army of goodness!

As our family has been called upon to make significant changes to our life, we have been held in God’s keeping. We could not have made it through these past 36 months without you. You have truly been God’s hands and you have spread His light.

Some of you have given generously of your time. Some of you have driven me to appointments or taken me shopping. Some of you have given us money or paid for therapy, equipment, and medical appointments. Some have given food, cleaning, and other acts of service. Some of you have held my hands through painful treatments. Some of you have held me during seizures. Some of you have prayed for me and with me. Some of you have given smiles and hugs. Some of you have written notes full of faith and encouragement. Some of you have cried with me. Some of you have given Priesthood blessings. Some of you have helped me with my family history work. Some of you have listened. Some of you have carried my zero-gravity chair all over Timbuktu. Some of you have taken care of our children. Some of you have repaired our home. Some of you have been the support team for Richard and our children. Some of you have worked in our yard. Some of you have put my body back together again. Some of you have picked me up off the floor and carried me. All of you have lifted burdens. All of you have loved.

Today our hearts are full of gratitude to you and for you. Thank you for walking this journey with us. Your service has made all the difference.

In the past three years, I have had a labral tear in my hip, a broken left foot, a dislocated right foot, dislocated ribs, dislocated jaw, dislocated shoulders, nearly constant pubic bone issues, stretched MCL, torn LCL, torn meniscus, hundreds of seizures, thousands of passing out episodes, and many more injuries I am forgetting. I have been diagnosed with Ehlers-Danlos syndrome, a connective tissue disorder that means my collagen is defective and my ligaments do not hold me together very well. As a result of my injuries and the subsequent damage to my nervous system, I have also developed POTS, which is Postural Orthostatic Tachycardia Syndrome, and Dysautonomia, which are just fancy ways of saying my body has a hard time running the automatic functions of my body, such as heart rate, blood pressure, digestion, temperature, and blood flow.

Two weeks ago I was in a minor car accident and we have yet to see the full results of these injuries as we are still in the figuring-things-out-stage – all I really know is my face, neck, shoulders, ribs, spine, and pelvis are in a world of hurt.

I have absolute faith in God and know He can heal me. While a complete blessing of healing has not come, many dear and precious blessings have been poured out upon me. At the same time, He is teaching me how to live in this oft-injured state. I never know how my body will function from day to day and am learning to be grateful for the really small things in life.

There are not sufficient words to express my gratitude for your kindness and generosity to me. Thank you for everything you have done and will do in the future.

Your presence in my life and your generous service have filled this difficult journey with light, love, laughter, and most of all, faith, hope, and peace.

I love you,
Tracy

Richard, Blythe, Keziah, Fisher, and Annesley also say THANK YOU!

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up to somethings

Feb 18, 2015 by

Oh my, the time gets away from me and before I know it, a whole week (or more!) has gone by without me posting.

Here is what I am up to:

  • Paperwork and medical appointments for my oldest who is getting ready to serve a mission for our church. The process is pretty easy and quick, but, boy howdy, it is a lot of hard decisions and work for those of us who don’t have a family doctor and easy medical history. We are facing some pretty big decisions regarding medications and so far, I still don’t know what to do. These are the times I *almost* wish we could just be normal people who go along with the masses and just do what everyone else does, but since there are all sorts of immune system issues, allergies, and a firm belief in whole foods, herbs, natural medicines and alternative treatments, I simply cannot go along with masses.
  • Trying my darndest to heal from this car accident. It was SUCH a small accident and yet, my body is really struggling. The pain, headaches, numbness, inflammation, and exhaustion are quite the humdinger. I actually went in and had x-rays taken last week and they showed my spine all wonkified. On the advice of the doctor I saw and Jeremy, I am giving in and taking some prescriptions to help the muscles and the generalized inflammation in my body calm down.
  • Dealing with the car accident phone calls and paperwork. ARGH. It really isn’t a big deal. It is just a deal and one I don’t have time or energy for.
  • Got my bangs cut when my sister met us in Utah during Blythe’s dentist appointment on Monday. We did a quick bang fixeroo in the parking lot and were laughing so hard at the looks people were giving us that my bladder had a little incident. They were almost to my upper lip…after being cut above my eyebrows just 2 1/2 months ago. I think all the collagen and other supplements I am taking are making my hair grow a wee bit too fast.
  • Researching therapy pools and brainstorming HOW ON EARTH I could ever afford one and where it could go in my house so I could work my muscles everyday without fear of injury, time and expense of going to a pool that is a 20ish miles away, and having to find someone to take me since many days it would not be safe for me to go to a pool alone. It seems like a huge impossibility, but since I know it would be fabulous for my body, I am going to keep researching, thinking, and praying.
  • Fisher and I have started a new geography adventure with Holling C. Holling books. We are starting with Paddle-to-the-Sea and loving it. It traces the journey of a little canoe from Canada, down through the Great Lakes, and out to the Atlantic Ocean. We have some big maps from Beautiful Feet and are using their curriculum guide to give us a bit of structure on our journey.
  • Annesley and I are almost done with Little House in the Big Woods. I think we will just continue on with the series until she grows tired of it.
  • I am still teaching Worldviews to my five stellar youth and am also teaching an adult class on How To Talk So Kids Will Listen and while I love both of them, I have to admit, this car accident has really impacted my effectiveness as a teacher. I simply cannot move, talk, and prepare the way I would like to. They are going well, but my heart wishes for the situation to be different and I could be standing up and be the dynamic teacher I normally am. Teaching from a reclining position is pretty tough…and boring.
  • It is Ward Conference season which is an LDS term meaning a special Sunday meeting is held with each ward (generally small geographical area) in a stake (usually 7-10 wards) where instruction and training is given by stake leaders. Since I serve with the Stake Primary Presidency, I attend each of those ward conferences. This means lots and lots of meetings. Almost every Sunday, I am attending church services in other congregations than my own and then helping that ward’s Primary with any questions or concerns they might have. It is a wonderful opportunity to serve, be blessed by the many relationships I get to be a part of, and the Sunday inspiration I receive is beautiful. I love it. I also miss my own ward. Theoretically, I could attend my own ward on the weeks my other meetings are at a different time than my ward, but my body cannot barely handle the three to five hours of meetings it already has, there is no way it could handle another three hours on top of that.
  • I keep setting goals of things to get done each day and for the most part, they aren’t getting done. I have gobs of paperwork to get done for my classes and my church calling, but my body hurts to much to do any of it for very long. Cleaning or cooking are not happening at all and my children are ready to rebel at how much they are doing and how little I am doing. I am focusing on the basics of our family life and homeschool: phonics, math, stories, snuggles, scriptures, art, outside play time for the kids, and lots of art projects while listening to audio books. Blythe is doing almost all my driving and running around children along with lots of errand running. All the rest is going to have to wait till body recovers from this accident.
  • I don’t know what the typical recovery is from whiplash, but it is looking like mine will not fit that norm since I am still in so much pain. In the meantime, my knee has taken a complete back seat to my upper body. Jeremy hasn’t even been able to work on it my last few appointments, so I don’t know how it is doing. Tonight it is more sore than it has been recently, but I am hoping that with some ice and anti-inflammatories, it will feel better tomorrow. I have to keep reminding myself that we are hastening the healing…not doing nothing as I lie around with my ice pack.

    The three year anniversary of my hip injury is coming up on Friday. Yesterday marks the day of my last good run. I am thinking about how to celebrate…it will either be a day of mourning or celebration and my spirits cannot handle the mourning, so we need to find a way to celebrate somehow!

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fatigued

Feb 10, 2015 by

Oh my heck, I am tired. So incredibly tired. I have been exhausted for days on end. Annesley and Richard could not wake me up for scriptures this morning. When I finally opened my eyes around 7:30, she said I looked like I was dead when she tried to wake me up. Richard tried to rouse me for some snuggle time and gave up after my dead fish appearance showed no signs of changing.

I finally pulled myself together long enough to take a bath and tried to soak the soreness out of my neck, back, and shoulders, but instead my heart rate shot up to 130 and I collapsed after I got out.

Now it is an hour later and I finally feel strong enough and alert enough to start learning time with my little ones. Just for kicks, I looked up symptoms of whiplash and to my surprise (but not shock, since I am living it) fatigue is one of the symptoms. I should say it is, my goodness, I don’t think I remember ever feeling so completely and totally exhausted before (though I’m sure I am forgetting all those new baby years when exhaustion is just par for the course).

Time to get a move on it, Trace, there are two little ones ready…today we start Paddle To The Sea!.

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what can i do for you?

Feb 9, 2015 by

Sometimes I am a prickly porcupine to live with, sometimes I am more like a fire-breathing dragon. Often I am cheerful and fun and loud and spontaneous and caring and all sorts of other good things, but far more than I like to admit the grumpy monster comes out of me.

One of the things that brings out the prickles is pain, which has been in abundance for the last three years, but has seemed to be all-encompassing since the car accident last week. It feels like I cannot deal with another ounce of hurt added. Last night after 6 hours of church meetings, my face and neck and ribs were DONE.

Another thing is our tinsy little budget that changes all the time based parent’s forgetting their child’s therapy appointment or their vacations or having a sick child. We never know from month to month what our income will be and since our income is small to begin with there is not a lot of room for Richard to lose money when people don’t show up for appointments.

Put those two situations together and you get a giant, prickly, fire-breathing BEAST, which is what I was last night as I tried to make a budget for the month and the year and my physical therapy and Blythe’s appointments with doctors and dentists before her upcoming $400 a month mission. All of which seems like an impossibility.

And instead of continuing to pour over numbers and use my creative little brain to problem solve or think about how to bring in more money or how to cut costs or how to have more faith or how to simply give it all over to God who is endlessly showing me He is taking care of us, I opened my mouth and spewed out toxic sludge on the person I love most.

“Why was your check $600 short?” and “How on earth am I supposed to make this work?” and “Isn’t there something YOU can do to get more hours?” and on and on and on.

And he said, “I’m sorry. I’ll keep looking for a different job.” Then he went and cleaned off our bed (which was piled with my stuff) and came out and asked if there was anything he could do for me.

In my frustration at how much pain my face was in and my anger at our budget for the month, I almost spouted off that there was nothing he could do for me except earn more money, but I took a breath and let his kindness fill my heart. Then I looked in his eyes and let it all melt away.

This is why we are still married. Because he serves and loves and forgives. He shows me on a daily basis what love does. What it looks like. What it feels like. Ever so slowly I am learning to love and serve as he does. To put his needs before my own. To sincerely and actively seek to improve his life.

An article by Richard Paul Evans is circulating around the interwebs about marriage. It is excellent advice and I know first-hand how effective it is because my Richard lives that style of love every single day.

The pain may be an on-going part of my life, most likely, the budgetary challenges will be, but those things are not what really matter. Our marriage is what matters. Our treatment of one another and the love we bless each other with is what matters. The people we become as we serve one another is what matters. The covenants we keep are what matters.

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that knee is starting to heal!

Feb 5, 2015 by

I totally forgot to post my good news from this week! The LCL in my knee is tightening up! The sideways stability is increasing and the pain is decreasing and my walking is improving.

We passed the eight week mark on Sunday and if prior injuries are an indicator, I have another four to eight weeks of healing to go. My outrageously expensive brace is helping a lot and I continue to ice it when it is sore, but in the past 11 days I have only needed to ice it once. Isn’t that exciting!

Not to dampen the good news, but just to document…my jaw hurts like heck and is clicking when I open my mouth very far. The bones around my eyes are super tender. I can barely move my head to the right, but to the left is pretty good. The vertebrae in my spine feel compressed and my sacrum, oh, my goodness, the sacrum is hot to the touch and feels like screws are turning in it. My right foot, which must have been hurt somehow in the accident, is pretty sore and unstable. Jeremy taped it all up on Monday, which is helping, but the bones feel like they shifted out of place yesterday with all the walking at iFamily.

I took Blythe in yesterday and she has whiplash as well. Not as bad as mine, but it is causing her neck and head pain.

Time to cover myself in some menthol-y oils and start learning time with the kiddos.

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anything that can go wrong…

Feb 3, 2015 by

You guys don’t want to hear this. I don’t want to type it. But I can see it is going to impact my life for the next little while so I better record it for my posterity’s sake.

Saturday I finally felt good enough to go to a homeschool conference (the one I was supposed to speak at, but cancelled because of my knee injury) and didn’t pass out or even have many episodes of tachycardia. It was amazing to feel so good! Sheri and I had a lovely time and I left feeling renewed and full of ideas to implement into our routine. As we sat at the stop sign ready to leave the parking lot of the conference, we were rear-ended. YES, you read that right, REAR-ENDED.

In our new-to-us car that we got around New Year’s after Richard’s car finally bit the dust completely.

The car is okay.

I am not.

My facial bones ache.

My jaw aches.

My neck aches.

My back aches.

My ribs ache.

My hip aches.

My foot aches.

My head, which never gets headaches, aches.

Ice and therapy and more ice and sleep and more ice have been the tasks for the past several days.

I am not complaining to God, but I am asking Mr. Murphy, “Isn’t it enough that my LCL and meniscus are currently torn? Isn’t it enough that I pass out regularly? Isn’t it enough that my pelvis is so incredibly unstable that someone bumping into me can dislocate my pubic bone and femur? Isn’t it enough? Really?”

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a new direction

Jan 26, 2015 by

We are at the seven week mark of this vagal nerve and knee injury and have been working hard to discover what direction we should go with my treatment and I think we have found some answers.

A few weeks ago a friend of mine came over and worked on the foot zoning points of the vagal nerve. After that appointment, I stopped throwing up and my burping decreased significantly. She taught Richard what to do so he could work on my feet each night and as he has done so, the burping has continued to improve. She has come several times since and the tachycardia and digestion issues are improving as well.

Last week I was able to see a doctor at a specialty medical clinic for four days. Jen accompanied me to take care of me and we had an amazing and eye-opening experience. We had a ton of fun and learned a lot about my body’s needs. I was really, really, REALLY hoping to get stem cell injections into the LCL and meniscus to jumpstart their healing, but there is Procaine in the solution and he said my nervous system could not handle the injections without it, so we created a different treatment plan.

This morning I started an oral stem cell regimen that I will stay on for 3 months and then we will reassess the state of my body. The doctor gave me a very involved nutrition plan, supplements, medications, and stem cells, all of which is going to be a full-time job to get inside me on a daily basis. Yesterday I was able to program my phone with the 17 different reminders of food I need to be eating or medicines I need to be taking throughout the day and with three reminders already done for today, we are off to a stellar start.

The nutrition plan is aimed at two things: one, maintaining and hopefully increasing the amount of lean body tissue I have and two, giving my stomach all the help it needs to be able to digest food so my intestines can absorb nutrients. One of the new things we are implementing is drinking 1 quart of water with 1 TB. of baking soda and the juice of 3 limes at specific times of the day in relationship to the food I am eating. This is supposed to change my pH and help my food digest easier. Let me just say it is pretty disgusting. I did get 1/2 quart down me yesterday and today will be the full quart.

I also have to eat 6 tinsy meals a day that are protein heavy with lots of veggies as well. I can eat some very limited carbs, but not at the same time as I eat proteins as that makes both the proteins and the carbs harder to digest.

Interspersed with all this food are supplements, medicines, and stem cells and at first it was mind-boggling to me how to make it all work, but I think I have created a workable schedule and with the help of my phone beeping at me to remind to take this supplement or eat that food, I think it is doable.

Today my heart is full of gratitude for the opportunity I have been blessed with to start on this new treatment plan. The Spirit has been with me this past week and testified to me that this is the right course of treatment at the time. So as a family, we are going to pull together and give it our best effort.

Now on to reminder four.

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a little peek into my heart

Jan 17, 2015 by

The depths of despair have not hit me. I am okay emotionally and spiritually and am in a pretty good place of both gratitude for this experience and acceptance of what is currently my life.

But I am sad for the things I am missing and today my heart is hurting a bit. There have been a lot of things missed over the course of these injuries. We have just passed the two year mark of the shaking/passing out episodes and in February it will be three years since the initial hip injury. Even though it feels like an entire lifetime ago, I still remember so clearly lying on the floor of Jessica’s parents home and trying to convince everyone that even though I hadn’t walked for 5 weeks, I was FINE and did not need an MRI and it would get better with time. Well, my friends insisted on me seeing an orthopedic surgeon who subsequently found I have severe hypermobility in all my joints and arranged for an MRI that found the labral tear in my hip socket.

And while my labral tear was helped greatly by the Prolozone injections, the havoc played on my body from that injury, bedrest, and muscle weakening has been challenging. It seems every few months there is a new orthopedic injury that takes about sixteen to twenty weeks to overcome and during those weeks of recovery time the rest of my body gets weaker and more prone to injury. The current injuries we are dealing with are a torn LCL and torn meniscus, sensitive vagus nerve, impinged left shoulder, and severe pubic bone instability causing quite a bit of pain throughout my pelvis.

Each of these injuries cause me to miss out on things that are really important to me. Like chasing my children, going on walks, riding my beloved bike, hiking in the woods, having the freedom to go where I want to go, teaching gymnastics, and holding my Annesley in my arms. This month I was scheduled to speak at a huge homeschool conference down in Utah about two of my favorite subjects, teaching math in fun ways and How To Talk To Kids So Kids Will Listen and Listen So Kids Will Talk. I was over the moon excited about this opportunity to share my passions with hundreds of people. A few weeks ago, I decided I simply cannot present. My knee will not allow me to stand for more than about five minutes and my vagus nerve is acting so unpredictably that I was concerned that even if I taught from my wheelchair there was a good chance I would pass out, throw up, or have an episode of tachycardia right in the middle of my presentations.

So I bowed out. And I am super sad. Sad for the growth it would give me as a speaker. Sad for the missed connections with people. Sad for the missed influence I could have on other’s lives. Sad for the impact they could have on my life.

One of the hardest things for me is the limitations I have in connecting with others. Connection with people is something I live for – it energizes me and brings happiness to my soul to talk with other people and learn from them, laugh with them, and love them. And I miss that. I still get it, but it is so much less than it used to be. Many times I do not have the ability to go and talk to someone across the room. I have to wait until a person comes to me to visit. Often, the person I want to give a hug to or thank or compliment or share something funny with does not come. Sometimes I ask Richard to go get that person and bring him or her to me, but it often feels a bit too awkward…because that fluid, light, happy conversation that happens naturally when you are nearby and start talking with a person has now been turned into a formal event requiring an invitation to come and speak with me.

The other uncomfortable aspect with this whole connection thing is that the topic of conversation with almost everyone in my life is my body. I do need to talk about it and share, but often I want to shout, “I am not my body! I have a mind and a heart and interests that have nothing to do with bones and cartilage and ligaments. Let’s talk about fabric or books or ideas or something else besides my body.” At the same time, it is really important to me for people to understand what is going on in my body. I want people to know so they can be praying for me or know when I need extra help or know to rejoice with me about some milestone being reached, but I don’t really want to talk about it. I just want them to magically know so I feel we are in the same place of understanding about my body’s needs and then we can laugh and have fun and talk about something else.

A bit of a high expectation there, eh? Yes, I know. I want to type out my physical and emotional and spiritual journey on here and get it all out. And then I don’t really want to talk about it. Having to rehash it over and over and over is exhausting and a tad depressing. In addition, when there isn’t good news to share, it is really hard for me to want to share anything at all…the last thing I want to be is the depressing, negative nincompoop everyone avoids. Can’t all the people in my life just read my blog if they want to know what is going on??????? I know. I know. It isn’t that interesting and who has time to read my rantings anyway? But, oh, how it would help me when I have to answer all the questions from the wonderful people who care about me.

Anyway, just read this as a Saturday morning brain dump of zillions of thoughts swirling around inside me as I lie here in bed on a cold, snowy day thinking about the conference I won’t get to speak at, the sledding I can’t do with my children today, the grocery shopping I won’t get to do (and yes, I know not doing the shopping sounds lovely when you have to do it, but not being able to select the food for my family is a challenge all its own), the inability to just hop in my car and go visit a loved one, and the many other things I am no longer able to do. Life could be a zillion times worse and I am both grateful for this powerful learning experience and overwhelmingly grateful for the bounteous blessings that are and have been poured out upon our family to help us get through it. I know all of this and I really, truly still am in a place of gratitude. But I am also sad that one of the prices I have to pay for this dear and tender experience is one of missing out on other dear and tender experiences.

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our current books

Jan 15, 2015 by

We are spending lots of time snuggling and reading. There isn’t much else I can do right now, so it is a season of books. Annesley and I have started reading Little House in the Big Woods. I have my old, tattered, yellow set from my girlhood days. Then I have a complete other, still old, but not quite as tattered, blue set I picked up at a thrift store. We also have a few hardcover copies of the beautiful, artwork-on-the-front ones. But, when we decided to embark on this new adventure, I decided to pull out a big, beautiful, five-novels-in-one, gold-leafed edition I was saving for either Blythe or Keziah. She loves fancy things and fell in love with the gold pages and tinsy illustrations.

Little House Cover

Fisher likes to listen in and he is often found building some lego creation nearby while we read about Laura’s life with her family in the big woods of Wisconsin.

Last week Blythe drove me to physical therapy and then to run a few errands. We were able to go to the library and with the help of the scooters, I was able to zip around all three floors of the library and get a pile of fun books to explore. We have a new author on our list of favorites – Andrea Beaty. She has written Iggy Peck, Architect and Rosie Revere, Engineer which we already knew about and loved (and seriously, you should read them!), but when we got to her shelf at the library, we found another gem! Happy Birthday, Madame Chapeau is a fun, rhyming story about a hat maker in France who designs fancy, exotic hats for all of her customers and is deeply lonely for a friend. Annes keeps asking us to read it over and over and even asked Miss Sheri to read it to her when she stopped by for a visit.

The Rabbit Problem by Emily Gravett is pure genius. It is Fibonacci’s famous rabbit problem – “How many rabbits will you have in one year if you start out with one?” – portrayed with hilarious illustrations, calendars, carrot recipes, and a glorious pop-up of hundreds of rabbits on the 12th month. Really, go get check it out and laugh yourselves silly as you and your children learn all about Fibonacci numbers.

Another new favorite is The Art Collector by Jan Wahl. It is about a little boy who loves art, but isn’t adept at making the art he sees in his mind come to life (yes, I identified with little Oscar!). So, he decides to collect art so he can look at the pieces he loves so much. His collection grows and he has a museum built to hold his collection and share it with others. Such a delightful story.

Fisher and Keziah have both listened to Little Britches this week and Fisher has been listening to The Lord of the Rings. Blythe is reading Pride and Prejudice again and I have been reading Call The Midwife and To My Friends: Messages of Counsel and Comfort. Richard just finished The Black Hole War: My Battle with Stephen Hawking to Make the World Safe for Quantum Mechanics.

Our family read-aloud right now is still The Wingfeather Saga. We are on book four, The Warden and the Wolf-King, and have about 250 pages left. Our reading time at night is quite limited because of the big girls’ schedules and we are in the middle of play month for Blythe. She will be performing for the next 9 days and has had a heavy rehearsal schedule the past couple of weeks. That along with her work and symphony schedules puts her home late several nights a week. I think this will be the last read-aloud we do as a whole family because her schedule is too difficult for the rest of us to work around {tears}. On the nights she is home, I try to read to everyone for an hour so we can continue to make some progress. At the rate we are going it is going to be March before we finish! I am hoping for some long Sunday night reading sessions over the next few weeks so we can get to the exciting conclusion.

Kat really wants me to read Quiet so I can understand sensitive souls like her a bit better so that is on my goal list for the year. I think Annesley and I will keep reading the other Little House books for the next few months and I have a whole stack of books I need to be reading for my Worldviews and How To Talk classes. So my next 5 months of reading is pretty planned out and I haven’t even made my book list for the year for my colloquia group! What are you reading? Do you have any suggestions for fabulous books for my monthly book discussion group?

In other news, my knee brace is here and working well. Finding pants that will fit over top of it is proving quite challenging so it looks like I will be wearing knee length yoga skirts for the next several months. I totally overdid it yesterday trying to shop for a pair of pants, so all the muscles in my leg are pretty unhappy today, but my knee feels super stable in the brace and I am thrilled to have it and to be done with the tape that has been holding me together for the past five weeks.

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argh, i want this pain to go away, but if i am stuck with it, i might as well rearrange

Jan 10, 2015 by

My knee hurts. I think it is hurting more each day…or maybe I am just getting tired of it. I’m not sure anymore. I do know the shoulda-woulda-coulda monster is eating at my brain and I wish I could rewind time and go back and make some different decisions on the day I fell.

A knee brace will be delivered to my door on Tuesday and will be my new friend until this ligament heals in 12-16 weeks. I have been taped up with Leukotape for the past five weeks and while it is amazing stuff and holds me together really well, it is breaking down my skin making me dream of sawing off my itchy leg in the middle of the night. I’m not sure how well the knee brace will work, but it will make bathing, applying comfrey compresses, oil packs, and BF&C much easier. In fashion terms, it is going to be a real drawback as it needs to be against my skin and the only thing that will fit over top of it will be super baggy stretchy pants. Oh my.

I also have new pair of Danskos coming my way. My feet do really well in Danskos and my pair of Shaylas from February has worn out. Wearing the same pair of shoes 6 or 7 days a week will do that I guess. So, at least my feet will be cute and comfy while I wear my super-stretchy pants. HA!

In other news, I finally finished the rearrangement project we started ten days ago in our wood room (A silly name…it is the first room you walk into in our home. It has a wooden floor, so I call it the wood room. It could be called the dining room because sometimes the dining table is in there, but sometimes the couches are in there and then it is the family room. My children were endlessly getting confused when I would give them jobs to do, so now we call it the wood room regardless of its function and everyone knows what I am talking about when I tell them the wood room needs vacuumed.) Anyway, all these weeks of lying here staring at the walls of my house have made me want to change things and one of those things was the brown, particle-board bookshelves in the wood room.

The problem was where to put the books? I had 680 inches of shelf space in those shelves and I had to move all those books somewhere else. At first it seemed impossible. But I was determined to change the look of the room by getting rid of the brown shelves. Richard chuckled at me and said it could not be done, but I kept plugging away at it all week and slowly, but surely we have solved it. First solution was to reclaim the two shelves by the front door that we have been using as shoe shelves. That gave us 160 inches. Then, we moved the 4×4 Expedit out of our bedroom and the 2×4 Expedit out of our hallway giving us 312 inches. Then we filled two of the shelves on our empty 72 inch wide bookshelf downstairs, giving us 144 inches. Now we were at 616 inches of usable space and almost all the books had found their new homes. I boxed up two shelves of childbirth books (kind of teary about those ones…but I am not attending births as a doula right now and I am not going to be birthing a baby unless some miracle happens, so I decided they would need to go into boxes until they are needed again.) and found lots of books that don’t even need to be in our home anymore. Now, I have a pile of books to sell and lots of piles of stuff to sort through that were on the Expedits to begin with, but the wood room is clean and orderly and I am loving the new look of it. Maybe now it won’t be so painful for me to hobble by it?

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another shot at some eensy-weensy goals

Jan 4, 2015 by

It is a time of resolutions, is it not? People are choosing Word of the Year, setting new goals, and making changes in their lives.

I am not up to any big resolutions or even a small resolution. It feels simply overwhelming to think of making or committing to anything for the long-term.

But, the change of the years has hit me and I am succumbing in a few small things. Two years ago, we started setting four small goals every week during Family Council. It didn’t last long at all, because on January 8 of that year was the fateful day of the first passing out/shaking episode. Today, I decided to start the process again, so we all set our goals tonight and are going to endeavor to accomplish them.

Here are mine for the week:

Physical: Take my supplements every day.
Spiritual: Read To My Friends each morning after scripture study.
Academic: Read one chapter of Understanding the Times.
Random: Make bed every day.

One of my favorite goals set tonight was Annesley’s random goal. She decided she would play outside for 6 hours and 99 minutes this week. I almost said that was not an appropriate goal, but then I remembered reading about the 1000 Hours Outside project and decided to encourage her instead.

The other change I am implementing is to start a Bullet Journal in an attempt to organize my life in some small measure. My notebook isn’t here yet, so today I am starting it in a different notebook so I get in the practice of doing it. As soon as I have a few weeks under my belt I will share my thoughts about the system and let you know if I think you should run for the hills or give it a shot.

In other news, I attended church today for the first time in a month and it was especially sweet to partake of the sacrament and ponder the atonement. I don’t know what it is about church that sets my body off, but it continues to be a place of lots of POTS episodes despite my trying to do everything I can to prevent them. Today we had a few close calls of me almost crashing to the floor, but we made it through and tonight I am feeling pretty good.

Tomorrow we are starting back on our regular learning/living/cleaning/eating/sleeping schedule. It seems we have been quite derailed ever since my fall on the 7th – nothing has been happening on any sort of regular routine all month. So, as it is now nearly 10 p.m., I better hit the sack so I can be up for 6 a.m. scripture study.

What resolutions/goals/changes are you implementing?

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hastening the healing

Dec 31, 2014 by

There is a weird dichotomy in my brain that says:

Pain akin to the last few contractions of transition stage and/or passing a kidney stone and/or severe toothache = Pain to listen to and gives me a valid excuse to modify activity level.

Everything else = Stupid pain signals that mean nothing is really wrong and I should be able to go on with my life as normal.

It is not very logical and doesn’t make sense to my dear husband or friends, but it IS my reality.

We are trying to change my perception of reality to a healthier version so I will learn that it is truly, 100% okay good for me to lie around doing nothing for weeks months on end.

See, my knee is injured. And I need to take care of it by not putting weight on it, bending it funny, or straining it in any way. And I am doing all of that. I really, truly am. Day after day I lay here on my bed or chaise and watch the world turn around me.

But I hate it. And I think, “GET UP, YE OL’ LAZY WOMAN. SURELY YOU CAN MAKE DINNER. SURELY YOU CAN WASH THOSE DISHES. SURELY YOU CAN DO MORE THAN SIT HERE ON YOUR DUFF!”

And I think those thoughts because it doesn’t hurt that bad. When I am lying here it hardly hurts at all, just a constant soreness, not a stabbing, excruciating pain that takes my breath away. When I get up and walk on it, it starts hurting worse, much worse, but it is still not excruciating, take my breath away pain. It is piles of soreness that drives me bonkers, but I can still talk through it. I can even still walk through it, at least most of the time.

Richard and Sheri and Kat and Jeremy are trying to get me to change paradigms, but it is really hard for me to see things differently. In my mind, if I CAN walk, I SHOULD walk, no matter the pain or soreness or whatever. Jeremy is trying to help me see that listening very, very carefully to my body and honoring it is essential (I DO totally believe this and until these injuries I thought I was pretty good at it) to my healing. He says doing everything I can to not be on my feet and further strain my knee is good for me. So, we are instituting a new motto over here.

 

Hastening the Healing

It looks like this:

Random person, child of mine, or most usually my own self: What are we doing today?

Paradigm changing me: Hastening the healing.

Random person, child of mine, or my own self-talk: Come on, let’s do something fun!

Paradigm changing me: Nope, I am hastening the healing.

Random person, child of mine, or my own self-talk: Oh, come on, it will probably be just fine, let’s do it!

Paradigm changing me: Hastening the healing is my first priority. Let’s see if we can do x,y,z while I lie here with my ice pack.

I am trying. Trying really hard to stay off my feet and give my knee everything I can to help it heal. It is super challenging and would be easier if I had to do full-on labor breathing to get through the day. I have only left my house a few times this month and have spent day after day reclining on my chaise with my throw up bowl next to me. But I did really mess up a few times. I tried to rearrange my school room on the Saturday before Christmas. My big girls did all the furniture moving work, but I was on my feet WAY too long and finally collapsed in an actual excruciating, take my breath away moment. My other big mistake was trying to shave on Sunday night and I pulled my knee and hip all wonky while trying to reach my ankles. So, I am still learning what the limits are and how to be okay sitting on my bottom day after day.

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the tv miracle

Dec 26, 2014 by

Back in mid-November, on a day my body was doing really well, Kat and I went to Costco. She started looking for Christmas presents and I had a “What the heck, is it almost Christmas??” moment. I had not even started thinking about Christmas and simply could not imagine going shopping for presents, even though at that time I was doing quite well physically. The thought of being out in weather, standing in lines, going shopping alone, and even just wrapping my brain around anything Christmas-y was too much. Surely it was only September and I had months to get ready for Christmas?

I said, “I wish I could just buy them a TV and be done with it.” Kat jumped right on that idea and said she thought it was a great idea. Later I presented it to Richard in a kind of snarky-listen-to-this-crazy-idea way. He loved it and actually was able to convince me it was a great idea and not a you-are-a-lazy-bum-who-doesn’t-want-to-shop idea.

Then we presented it to the kids. Blythe and Keziah were all for it. Fisher and Annes, not so much. I assured them they would have at least two presents to open, one from each set of grandparents, and after about a week of thinking about it, they decided to go for it.

So, with everyone in favor I decided to start pricing out TVs and decided we actually wouldn’t be able to do it. Our gas bill to go home for Thanksgiving was more than I thought it would be and Richard’s check was about $500 less than I was expecting. I didn’t know what to do. Everyone was so excited about the idea of an actual working television we could watch movies on and now I didn’t know if I could make it happen. I found a great cyber Monday deal at Sam’s for a huge 48″ off-brand TV with a Roku stick included for $348. I thought it was a great price and really wanted to make it happen, but I still didn’t have enough pennies for it.

I like to hoard gift cards, it gives me a sense of security to have a way to purchase needed items when we have run out of cash, so I started searching through our gift cards from last Christmas and was able to come up with $60 in unused cards. While I was searching for gift cards, I found a sealed envelope with Keziah’s writing on it. I had no idea what it was, but it had a note on it, “$$$$ I owe you.”

WHAT???????? What money did she owe us? And why was it in the bottom of my bill bin? And how much was it?

It turned out to be $300. The total for the TV with tax was $368. So, with Keziah’s money and the gift cards, I had to come up $8.00. Eight whole bucks. Oh, my goodness. I sat on my bed and cried. I knew this was a gift from an all-knowing Father. If I had known about Keziah’s money earlier in the year, I would have used it when our Suburban broke down. But instead, it was kept hidden from me until the moment we needed it.

We are having so much fun having family movie nights with this TV! I have been pretty anti-TV our whole married life, but we do enjoy watching great family films together. We are learning all about Amazon Instant Videos and I’m pretty amazed at how far technology has come in the past few years – the Roku stick makes it so slick to access content from the internet. Our children finally feel like they are part of the modern world, teehee!

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the story of the precious quilts

Dec 26, 2014 by

the story of the precious quilts

I usually tell people, “I can’t sew!” The truth of the matter is I can sew, just barely. Sewing is really, really, REALLY challenging for me. It doesn’t make sense to my brain. I can’t sew straight. I mess up back-stitching, have to unpick lots, and my projects leave a lot to be desired in the sewn-well-looks-pretty department. But for some reason, I love making homemade, home-sewn things for my children. It feels like I am wrapping up all the love in my heart for them and handing it to them on a silver platter, fabric platter, of course.

Jessica’s mom has been making birthday quilts for all of her grandchildren this year…and they are gorgeous. When the first one arrived at Jess’ home back in October, I swooned over it. But I didn’t even think about making one because Debbie is a quilter and I am not. At all. It seemed way, way, way outside of my abilities.

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Then when I saw the second quilt at Thanksgiving, I nearly died over it. I could not stop staring at it and touching it. Excuse the blurry pic, it is the only one I have and you must see it so you can see what inspired me! It is made with the Miss Kate jelly roll and I was so tempted to use it for Annesley’s, but in the end chose a different one.

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I loved them ever so much and in spite of the facts that I don’t sew well normally (certainly not well enough to make a quilt like this!) AND cannot sew at all right now because I cannot sit due to my hip injury AND haven’t sewn at all since the hip injury occurred in February 2012 AND knew I could not afford the fabric needed to make one quilt, much less four, I COULD NOT stop thinking about making these quilts for my children.

The whole drive home from Thanksgiving had my brain going round in circles trying to figure out how on earth I could make these for my children. I especially wanted to make something for my children because it is Blythe’s last Christmas at home before her mission. We always make something special for our children and we weren’t going to this year because we decided to put all our Christmas money towards a TV. We also didn’t last year because we adopted an orphanage in Ecuador instead of buying presents. So even though I loved the TV idea, my whole soul was longing to make my children something from my heart. The more I thought about it, I realized there was just no way. I could not come up with any solutions. None.

On Tuesday, December 2, Sheri took me to physical therapy and afterwards I asked her if we could stop by the fabric store so I could price out fabric. As we walked through the store I became more and more enamored with the idea and at the same time, realized it was going to be far too expensive to even consider it.

Late that night, Sheri showed up at my door with a plan to get me the fabric. I thought she was crazy, but after lots of laughter and tears, I agreed to her plan…she would buy the fabric in exchange for future gymnastics lessons and work with my husband. We checked with Kat about the possibilities of using her fancy machine with a start/stop button instead of a foot pedal and how she thought it would work for me to sew standing up at an elevated table. She thought it would work, so we stayed up for hours looking at online fabric stores and got the jelly rolls ordered and I started brainstorming what I could sell to earn some money to pay for the quilting.

The next day was the big passing out/shaking/vomiting episode and I had to spend several days in bed. Friday night I felt well enough to go pick out minkee and Sheri, Jen, and I headed to the fabric store and were blessed to find a big table of minkee on sale for $7.88/yard! We were able to find stuff to coordinate with the tops, pick out the binding fabric, and make it home without any vomiting.

Then on Sunday, the 7th, I fell at church and injured my knee. And I continued to throw up almost all my food. It seemed there was no way I would be able to continue the project because I felt so terrible with the stomach issues and there was no way I would be able to stand to sew with my knee in so much pain.

But once again, my awesome friends helped me. Kat figured out how to put the sewing machine on a table over top of my zero gravity chair so I could lay back with my knee elevated and wrapped in ice packs and still reach the start/stop button and guide the fabric. Every few days, in between vomiting episodes and usually late at night after our children were in bed, Kat would come and get me, set me up in my chair with her sewing machine on top of me, and mentor me through each stage of the project. It was amazing! Each time I finished a top, I would shriek with joy and cry big tears of happiness at how fabulous they were turning out. I just could not believe my very limited sewing skills could produce something so beautiful. Even though I sewed all the stitches, it was Kat’s awesome tutelage that made them turn out so well.

My aunt owns a quilting business in Wyoming, so the next step was to get all the tops to her. We sent some of the tops on the 16th with a woman from my hometown who was up here visiting her daughter (thanks Lori!), then finished the remaining tops at about 2 a.m. Wednesday, the 17th, and sent them to Wyoming with our friend Tamia who was taking her boys to visit Jessica’s family for a few days. Then my mom got them from Jessica and took them over to Angie.

Angie worked her magic and then got them over to the fabric store to be bound. They were all done by Saturday, the 20th. But my mom was down in Salt Lake for the day and couldn’t pick them up. She had to leave early Monday morning before the store opened to come up here to deliver them, so she started calling all sorts of people to see if someone could go get them. She finally found someone (thanks Karen!) and we were one step closer to getting the quilts into my arms before Christmas morning.

Meanwhile I was here fretting about them, wondering if the quilting turned out well, if I had chosen the right designs, the right color thread, if the binding was working, and a million other things. I could not sleep Saturday night for fear I had completely ruined the whole project by choosing something wrong.

Also, that day I sold my beloved Singer 301A to finish up earning the money to pay for the quilting. It is my favorite machine to sew on and an incredible workhorse. I sewed my first and only quilt (until now) on it back in 2011. It was one of the things I knew could bring in some money and I since I can’t sit to sew, I can’t use it anyway. I have been holding on to it with the hope that someday I will be able to use it again, but I decided it was time to face the reality that I may never sit again.

Then on Monday, the 22nd, my mom showed up with her presents for our family and the all-my-hopes-pinned-on-them quilts. After she took my kiddos to a movie, I unwrapped the quilt package and burst into tears. They were so, so lovely. I could barely breathe, I was so in love with them.

Christmas morning my children opened one and only one gift from their parents – the quilts! They love them and have been snuggled up in them ever since.

Thank you Sheri, Kat, Jen, Angie, Lori, Tamia, Jessica, Karen, Charla, and mom. Thank you so much for helping me make this dream come true.

Annesley’s ray of sunshine quilt made with the Bloomin’ Fresh jelly roll. Hers is stitched with pink thread in a design of hearts, flowers, and stars. So cute!

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Fisher’s bold quilt is made with the Mixed Bag jelly roll and has orange zigzag binding. He loves, loves, loves lime green, orange, and red – this is so perfect for him. It always cracks me up that such a quiet boy is drawn to such loud colors and fabrics. His thread is blue and is quilted in a chevron design. His is the only one I wish I had done differently. I should have chosen a bug or airplanes design, but the chevron looks great.

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Keziah’s is done with the Girl Crazy jelly roll. She loves old cruiser bikes, so we did the quilt design with bikes and Scotty dogs (dogs are perhaps her biggest passion!) with turquoise thread and the binding is bikes too!

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Can you see the bike design?

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Blythe loves hot pink and other bright colors and I think the daisy quilting design goes with her fabric perfectly. It is made with the LOL jelly roll and has both hot pink binding and thread. She loves it!

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You can see how to make this Jelly Roll Race quilt in this video tutorial. This quilt pattern is called a one hour top and maybe it is for someone, but not for me. I’m about as slow as molasses. I sewed Blythe’s top first and it took me nine hours. By the time I got to the last one, I was down to about three or four hours. If you are a beginner quilter, this is an excellent project. It is technically easy, comes together quickly, and turns out beautifully. I would guess if you have any sewing skills at all, you can make the top easily in two – three hours.

I still can’t believe we got these done in three short weeks…and not three good weeks, three really, really hard weeks for my body to do much of anything. Pretty much a Christmas miracle!

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such a silly ditty

Dec 24, 2014 by

My mom came to visit the past few days and brightened my spirits immensely. She helped me get all the odd and ends done for Christmas and brought presents! Most of all, she gave my children some much needed love. It hasn’t been a very fun month for them because we haven’t been able to go many places and I haven’t been the most cheerful mom on the planet. She just drove away and this silly little ditty poured out of me…it isn’t good poetry or anything, but she’ll like it.

‘Twas the day before Christmas when all through the home
My mama is working herself to the bone
The dishes and laundry and cooking up treats
Are her gift to me as I sit on my seat.

Took kids to the movies and had lots of fun
She sure can keep up even if she can’t run
Her knee swelled up huge as she hobbled around
Taking us all out for fun on the town.

She took me shopping for stockings and groceries and stuff
We almost got hit, TWO TIMES, it was rough!
We giggled and laughed as I burped through the day
Oh, how I wish she could come here and stay!

Now mama must return to her quiet house
Where creatures aren’t stirring, not even a mouse.
She brought us some presents, some help, and some cheer,
We hope she’ll come back before the new year!

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this pitcher can throw, but i haven’t struck out yet

Dec 18, 2014 by

Life throws some pretty tricky curve balls sometimes. I’m a pretty good hitter, but I never saw this one coming.

On December 2, I had a fabulous appointment with Jeremy and was cleared to start exercising again after I had injured the inguinal ligament back in early October. We had just finished up a fairly uneventful Thanksgiving week and my body was doing really well. I was ready to start building some muscles and kick off the Christmas season.

On December 3, my dear friend, Heather, invited a group of us to go to lunch and fill her up with some love and laughter. We had a lovely lunch catching up on the events of all of our lives and laughed ourselves silly. I always lie down during our Red Robin escapades and this time was no different…except I was squished and my head was turned really wonky.

Somehow, the yucky position my neck was in reinjured my vagus nerve, stretching it out and irritating it right back into hypersensitivity mode. I stood up at the end of our meal, collapsed right in the restaurant and proceeded to have many episodes of passing out, shaking, and vomiting. It was awful. Probably the worst episode yet. At the time, I thought it was a one-time deal – I had no idea that I would not feel hungry for the next several days, that anything I did eat would come right back up, and that my stomach would ache for hours and hours and hours after I was able to get the tinsiest amount of food down.

Vomiting is probably my least favorite thing. I puked my guts out during all of my pregnancies and haven’t thrown up once since Annesley’s birth seven years ago because my body is DONE with the puking.

Until now. Oh my goodness, the puking. A few days ago, in the midst of an hour long puke-fest, I told Kez to text Richard and tell him I was dying. I didn’t really think I was, but I was not at all sure I was going to come out alive on the other side. I’ve thrown up in all my sinks, my garbage can, my trusty bowl that is my new companion, my bath tub, in multiple parking lots, in my hands, my hair, and all over my shoes. The worst was throwing up a huge puddle of protein/chocolate/green smoothie at a man’s brand new home – what a housewarming gift! After two weeks of this, I am about to give up on eating entirely. It is disgusting and painful and exhausting. I am now eating a very small meal about every 24-36 hours. I have kept the last two down and am hoping this means some healing is occurring.

A few days after the vomiting started, I passed out at church and injured my knee. The LCL is partially torn and the meniscus is torn. The LCL might heal. If it does, it will take 2-4 months. The meniscus will not heal, but it may be livable. We won’t really know until the pain from the LCL decreases so I can assess the meniscus pain by itself.

So I spend my days icing and elevating and sipping water and trying to figure out how to adjust to this curve ball. I am researching how to calm the vagus nerve and have come up with some ideas we are going to start implementing. As soon as I can get some ginger, I am going to start taking 600 mg 3 times a day. I am applying nerve calming oils to the vagus and digestive oils to my stomach. I am working on slow breathing, taking time to ponder, and working on being calm. I am trying to get up really, really slowly and keep my sympathetic nervous system calm, for when it ramps up, the parasympathetic system has to ramp up to balance it out.

Our December already feels so derailed from how I imagined it. I haven’t shopped for a single gift for extended family, friends, or neighbors. Baking goodies with the kids has not happened, nor has standing in shopping lines, looking at lights, or attending any parties, recitals, or concerts. Even getting our nightly Christmas book in has been a tremendous challenge when I feel so miserable.

This is going to be a new journey – new twists and turns I cannot yet foresee. I am trying to open my mind to acceptance for the road my body is taking us all on. My job is to believe and hope and work for healing AND accept with grace and dignity the journey I am on.

I don’t really know what the point of this post is except perhaps for me to get the disjointed thoughts swirling around in my mind out on paper screen so I can remember being in the midst of this journey when the next one comes and I need help getting through it. Just yesterday I read a post from the last time my vagus was acting up and rereading my words filled me with hope and faith that God can heal me this time, too. This may be a short jaunt into the land of non-digestion and knee injury or it may be our new life. At this point we have no idea where this road is taking us, but we do know we are surrounded by family and friends that love us and we are in God’s keeping.

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nnnnooooooooo!

Dec 13, 2014 by

Whine. Grump. Complain. That is what I feel like doing. I wouldn’t let Richard kiss me goodbye this morning and basically just told my two superhero friends to take a hike. This is the ugly part of a chronic condition that keeps rearing its head in painful, debilitating ways. Sometimes I let it win and drive me to the depths of despair and I guess today is one of those days.

Ten days ago, I went out to eat with my friends and then collapsed and puked my guts out for several hours. I thought this was a one-time event. But it has continued and wore me right down. I am not hungry, nothing sounds good, and when I do eat, the food sits in my esophagus for hours and hours. Then as soon as my heart rate goes up, the food comes right out. It is disgusting and messy and mortifying. We are thinking my vagus nerve got stretched when we were out to eat and it is going to take some time to calm down.

On top of that, I passed out at church on Sunday and fell so fast and hard that Richard and Amy couldn’t catch me. My right leg crumpled underneath me and my knee was bent all wonky up underneath my bottom. The very unfortunate result is an injured LCL, MCL, and meniscus. We have been icing and oiling it all week, but it is not feeling better, if anything it is quite a bit worse. I probably need surgery, which is a whole pile of pennies I don’t have and my connective tissue disorder doesn’t work well with surgery anyway. I am so discouraged about the whole thing…the pain, the inconvenience, the money, the long-term effects, the everything.

Most of all, I am feeling like a burden. A big, fat burden who needs to go away and stop being a burden on my family and friends and complete strangers…which is why I told Jen and Kat to take a hike, I have burdened them for far too long. I cannot stop crying and I am ready to throw in the towel. The thought of another big injury to learn how to take care of and try to heal is too much for me today.

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with friends like this, i can stay in the race

Dec 4, 2014 by

I watched the Catching Kayla video a few weeks ago. Unlike most things I stumble across on the internet, this story has stuck with me, staying in my mind and teaching me lessons of life.

Kayla was a 14 year old girl who loved playing soccer when her feet suddenly started to tingle. The tingling spread until she had no feeling in her legs at all and she was diagnosed with MS. After figuring out a cocktail of medications that brought the sensations back to her legs, Kayla decided she wanted to run since she could no longer play soccer.

And run she did. Because of her courage and dedication, she went from a not-so-great runner to a strong, fast runner. Kayla has beautiful form and is a joy to watch run.

This part of the story alone was enough to inspire me. But there is more. During her runs, her body temperature rises which causes the tingling, numbness, and lack of sensation to return to her legs. In a way I can’t understand, she can keep running when this happens, but she can’t stop. Her coach has to catch her at the finish line and carry her out to the middle of the field to ice her down to lower her body temperature. When she collapses, she appears disabled and dependent. Her voice cries out “Help me!”

She runs with this wonderfully capable body and ends with a broken body that needs lots of help to be able to function again. She appears totally normal and I would think most people would never know anything is wrong with her.

Just like me.

I get it. I look normal. I can walk and talk and look completely and totally capable one minute and then seconds later be in a heap on the floor unconscious and incapable of taking care of myself.

Yesterday it happened again. A big group of friends had a lunch date at Red Robin. We laughed our heads off, ate delicious food, and buoyed up each other. Aside from lying down in our booth instead of sitting, I looked completely normal. I felt completely normal. And then I stood up. My heart rate jumped up to 130 immediately and I started to lose consciousness right there in the restaurant. The poor diners next to us were probably wondering what the heck was going on as my friends got my body to lie down, my legs elevated a bit (I think in someone’s arms?), and ran to get Jen’s Yukon. I started shaking a bit and I’m sure was a sight to see.

After a few minutes, I thought I was stable enough to walk out. I did okay for the first 30 feet and then I knew I was going down again. We made it into the car just as I collapsed a second time and this time passed out.

The cycle I dislike ever so much started with violent shaking, then passing out over and over again. My friends were holding me, assessing my heart rate, making sure I didn’t fall out of my seat, and doing all they could to help my body calm down. At one point I started throwing up which is about my least favorite activity in the world. These five ladies dealt with the awful stench, held bags in front of me, cleaned up the puke in my hair, helped me in and and out of the car so I could get it all out in a parking lot instead of a bag, and did all of it with compassion. Every time I would throw up, the shaking and passing out cycle would start again. Oh my. It was a doozy.

By the time the day was done I think I threw up in four different parking lots, passed out 10-ish times, thought I was going to be run over by Jennifer as the car started rolling into me on one of the throw up episodes, had a police officer come over to assess the situation of the shaking, crying, heaving woman who keeps losing consciousness, and thoroughly peed my pants during the endless retching…all out in public for all the world to see.

Oh, my goodness. Mortification sets in if I allow myself to think about it too much.

But this morning, I am thinking of Kayla and her courage to keep running in spite of the embarrassing things her body does at the end of the race. I want to keep doing the things I love even if it means my body falls apart. My body handles things pretty well if I stay home lying in bed or in my chair. I can do learning stuff with my children, direct the affairs of our home, send emails, and even do a little housework. It is when I go out that the troubles start. I don’t want to always stay home. I want to do fun things with my friends. I want to teach gymnastics and other classes. I want to be able to do my own grocery shopping. I want stay in the race.

And I think Kayla’s courage to keep running is the visual I need to keep running my own race even if it means other people see my body do embarrassing things. Life is worth living!

And because I have THE BEST friends who keep catching me when I fall, I can stay in the race. Thank you, dear ones, for allowing me to have a life outside of my home – I couldn’t do this without you!

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welcome december

Dec 3, 2014 by

We have had a long Thanksgiving week at my mom’s house. All my siblings came and it was really good to spend time with everyone. I haven’t been home since January…too long. There is something special about going home that fills up my inward parts like nothing else can.

We were able to attend church in my old, growing-up ward. Oh, the joy! Those people are my people. Although I have told them repeatedly, I’m sure they don’t really understand what an impact they had on my life. Their example of loving Christ, trusting Him, and being His hands in my life taught me much about discipleship. About service. About forgiveness and love and standing for truth. Two of my favorite people said the prayers…I loved hearing them give thanks to God. The whole three hours of meetings were full of happy reunions, hugs and smiles, and lots of beautiful messages about coming to Christ. My heart was filled to bursting.

The rest of the week was spent with my siblings and mama. We played Rook and Spades, cooked lots of yummy food (I actually don’t think I cooked anything, but everyone else did), took kids swimming a few times, and celebrated Annesley’s birthday. Mikelle spoiled us all with new haircuts. One day she did seven haircuts and two colors!

I was also able to go see my Jessica THREE times! Wahoo! She has moved to Wyoming and lives fairly close to my hometown, so of course, we had to take advantage of the close proximity and hang out a few times.

Now that we have been home a few days we are slowly getting our home ready for the month of Christmas. Our Christmas books are out and our tree is up, but not yet decorated. We are waiting for a time when we are all here together and (it is not the middle of the night!) to decorate and put out the nativities. I think the next time we will all be home when it is not sleeping time is Sunday. Ridiculous, but it is all for a good cause. This week is Blythe’s Symphony Concert and she is working two jobs on top of attending play rehearsals AND symphony rehearsals. She is leaving in the morning and getting home every night after 10:00. Long, long days for her.

I need to write a big ‘ol gratitude post and a post about Miss Annes’ birthday and I should probably post about today’s crazy shaking/passing out/puking debacle. (I really needed Jessica here today to witness the whole thing so she could write up a hilarious description and have us all laughing our heads off). Anyway, I may get to those posts or I may not. I don’t know. There is just not enough of me to go around.

Either way, welcome December. May this month bring peace and love and greater connection with God.

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goodbye lina

Nov 20, 2014 by

Our oldest is an animal lover. She has rescued and tended animals since she was a wee lass. At the age of three she started rescuing injured birds (and I can’t even count the number of birds who owe their lives to her care). The Christmas she was 3 and 1/2, her beloved cat, Spike (Spike the 1st, as she would later have a string of cats, rock babies, and actually dolls named Spike), got caught in our engine on our way to a Christmas Eve party. I thought the cat needed to put out of its misery, but she dutifully and lovingly nursed it back to health with a variety of herbal salves and lots of prayers. At the age of five she would sleep outside with her chickens in fancy party gowns from the dress-up bin. She could tame wild, scratchy, claw-your-eye-out cats and love even the most reluctant ones into becoming her ardent admirers. A few years back her Sarah developed a blood clot and died. Blythe hand-fed her and cancelled all out-of-the-house activities for two weeks while her favorite feline companion slowly passed away. She has been able to bring chickens, kittens, and puppies back from what seemed like certain death over and over again.

But last night she couldn’t.

Last night, this animal-loving girl, ran over her own cat, Lina. Lina tried to get to Blythe and dragged her body over to the house before choking on her own blood and passing away right in Blythe’s arms.

My heart is hurting for Blythe, my strong, brave girl. She has had to bury many animals in her short life. Somehow, she keeps opening her heart to love another. I am so, so proud of her and her courage in dealing with the harsh realities of animal ownership. She is made of some tough-stuff.

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delightful moments

Nov 18, 2014 by

After a lazy day of puttering around the house, getting letters sent out for next month’s baptisms for church, working on a big book order for the new Tuttle Twins book, and having learning time with the children dragged out over a long, extended afternoon, we had the surprise of a delightful evening.

Fisher, who is currently in an I-hate-doing-math stage, surprised us all by solving some tricky puzzle math problems and giggling while he did it! Then I read with Miss Annes our FIAR book of the week, Ferdinand, while we snuggled up together. Then I quizzed Keziah on all of her questions for her Sword of Freedom test coming up tomorrow and we laughed ourselves silly while naming all the battles, soldier numbers, acts of Congress, generals, landmarks, and all the other factoids she needs to have solidly placed in her brain by tomorrow. She keeps saying she is going to flunk her test and I, thinking she is an honest child, believed her. But she is not! Lands alive, that girl has this stuff down. She knew it up and down and inside out and would shout her answers with sass and absolute silliness. The answers she didn’t know inside out, she said such ridiculous things at the top of her lungs that I peed my pants a wee bit.

Oh, this girl. I love her. She reminds me so much of myself and what I would have been like if I hadn’t been living in my own childhood home of chaos.

We finished off the night with two chapters of the Wingfeather Saga…we are on the fourth and final book and I am so excited for the next few weeks of reading!

Some days as a homeschooling mama are long and hard and frustrating, but then there are moments like tonight that feed my soul and light my fire all over again.

Tonight was one of those moments.

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a moment of normal

Nov 13, 2014 by

Tonight I feel like a normal human being. A human being who doesn’t pass out, can walk through the grocery store, and walks at a normal speed. I haven’t felt this normal for weeks and especially not for the past five days since the shaking incident on Saturday. I spent Saturday – Wednesday in bed recovering. Then yesterday I was moving vvvveeeerrrrryyyy slowly as I made my way through the halls at iFAMILY and then to the Cross-Country Awards Banquet and then the Evening of Excellence program last night.

Jeremy worked on my inguinal ligament again today and said all the shaking on Saturday set me back on my healing time quite a bit. He would really like me to find a brace to hold my hip socket in place and give the muscles a break so they can heal. And while all of that is kind of depressing, I walked normally today. Normal speed, normal gait, normal heart rate, normal everything.

AND I TOOK MY BOY ON A DATE! Like a normal mother. A date with yummy food, a trip to the bookstore for a new Star Wars book (goodness, he is obsessed with all the Star Wars stuff!), and a quick trip into Sam’s Club for some staples like cheese, sour cream, and tortillas.

Oh, my stinking heck. What a blessing to feel like a normal human being for one afternoon.

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changed for good

Nov 11, 2014 by

Remember when I was preparing myself to receive an outpouring of love…boy howdy, did that love come! My dear friends, Tasha and Bob and their ten children, organized a whole army of other dear friends who swept into our home and yard and transformed it. They scrubbed and washed and organized and repaired. It was like one of those Extreme Home Makeover shows without the fancy sponsorships, television crew, and team of professionals.

In the space of eight short hours, they hung my bathroom door, fixed my dining table, fixed my beloved green table, repaired the back door, fixed the garage door, hung a rain gutter, and prepared the roof for a snow stop (Who knew there was such a thing! We just might be able to get in and out of our front door this year without having snow blocking the doorway!) They fixed the gaping hole in the deck, secured the deck banister so no one (especially me!) will plummet to their death, and repaired the deck stairs. They scrubbed out the fridge and freezer, cleaned out the pantry, washed every single canning jar and replaced them back on the top of the kitchen cupboards, cleaned out the inches of dust from said cupboard tops, and removed the ridiculous waste-spacing lights that people use when they put greenery up there instead of canning jars. Piles and piles of garbage were hauled off, trees trimmed, leaves raked, lawn mowed, and flower beds cleaned out. Our three bathrooms were DEEP cleaned – oh, my goodness, I had no idea they could even be that clean. Our messy school room was completely organized from top to bottom. The chandeliers were cleaned strand by strand, all the bookshelves dusted, and windows washed.

On top of all of this, they filled up our freezer with freezer meals, meats, and other goodies, our root cellar with potatoes, and our refrigerator with deliciousness. So. Much. Love.

I wish I had before pictures so you could see what a huge impact they made.

The newly repaired and pressure-washed deck. Isn’t it beautiful!

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Dustin and Troy fixing the deck stairs. These two were energizer bunnies, going from project to project faster than I could think of more broken things.

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Marie cleaning the lights. None of us are tall enough to get to those lights even when we stand on the table, so they are completely neglected and covered in dust most of the time.

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One of my little math students cleaning out our scripture-holding bookcase, she did an excellent job – it has NEVER shined like it did when she was done with it!

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Look how they transformed the yard! I’m not sure who worked outside since I never made it out there, but I think it was Kimberly, Dwayne, Cosette, Adam, and an army of youth.

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Bob, the jolly man behind this whole project. I love him so, so much. He teased me all day and got me to the point I could look at him with a smile on my face instead of tears running down my cheeks.

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Tasha will hate this picture of her, but it is just too picture-perfect of Bob’s antics to not post it. They were the brains behind this whole undertaking.

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Madi washing hundreds of jars.

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Keri and Dustin removing the ridiculous cabinet lights.

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The lovely Vanessa cleaned out my kitchen cupboards which were stuffed with who knows what!

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Jennifer tackled my disgusting bathroom…oh my goodness, the sparkles she created!

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Liz may die that I put her hiney on the interwebs, but look at that pantry! Look at those cleaned out shelves. I kid-you not, those shelves have been a death trap for months. Every time we open the doors, there was a risk of being attacked on the head by falling jars, pasta, raisins, or herbs. Always hoped for herbs.

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Near the end of our clean-up day, Liz took Annesley to a fundraiser for another friend of ours…a little baby with cancer. She brought her home all decked-out and happy as a clam. Way to multi-task Liz, fundraising carnivals AND pantry renovation AND growing a baby all at the same time! She also left us with a roast in the crock-pot that we thoroughly enjoyed late that night. I’ve never had a roast taste that good…it was amazing.

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Three of my favorite boys laughing their heads off while they scrub the dirt off their arms from working outside.

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Even the little ones worked. Thank you Mr. Levi!

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Sometimes the little ones played.

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And sometimes they ate.

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Jenn washing windows, I can’t even imagine the muck she faced on this task…I fight mold in this house constantly…and I haven’t been fightly valiantly for quite some time! She faced it head-on and eradicated all the yucky black spots that build up around the windows and transformed the glass into clearness.

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Since I spent much of the day crying, there is not a single good picture of me. My face is red and splotchy and I look like a beached whale in my chair. Jess kept me company wrapped up in my quilt…and I cried and tried to smile and laugh with my friends.

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At one point, Kat brought our her completely addicting apple dip and I was able to stop crying long enough to get a few pieces out of Jessica’s hands before she snarfed it all down.

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Keziah and Courtney stopped working long enough to paint their faces. They are SO silly…and SO fun.

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And even though her face is painted, this is one of the few pictures I have of Keziah (in her WHOLE life!) where she is not making a crazy face, so I have to share it for posterity.

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We didn’t get any pictures of Becky and Jennifer (the third Jennifer that was there that day…and my Jen, of the Jen, Kat, and Jessica gang) cleaning out my despicable fridge and freezer. Or of Amanda cleaning the upstairs bathroom that hasn’t been deep-cleaned since I broke my foot cleaning the ceiling last summer. Or Paula and Bonnie who washed laundry. Or any of the work done downstairs. Or Amy labeling all my canning jars. Or any of so many things. I basically laid in my chair and cried and sent my camera out on picture taking tours with various youth when my brain would turn on and remember I wanted to document the awesomeness.

I have been involved in and spearheaded lots of save-the-world projects. It is something I LOVE TO DO. And I have witnessed the power of people working together to raise money, put on events, spread love, and bless lives. I have been on the receiving end of lots and lots of kindness and generosity. So none of this is shockingly new to me. But I have never felt the power of community to transform hearts the way I felt it this day. This great outpouring of service done with such a beautiful spirit of love has changed me in a way I cannot describe. Throughout September my spirit was full of grief unspeakable. At times I wanted to shut myself off from the world. I could not bear to talk with people, which if you know me at all, you know talking with people is my life-blood. This day filled me with a deep hope…a hope that goodness will always triumph, that ordinary people can do and DO do extraordinary things, that my little family is known to God, and that while my garden of vegetables is hopelessly flawed, my garden of friends is overflowing with a most bounteous harvest.

At the end of the day, I laid in bed and sobbed. Deep, convulsing sobs. I poured out my heart to God in gratitude for this great kindness. Then I wrote a thank you letter to my friends…and many of them blessed me again by writing back.

To my Dear, Dear Friends,

Oh my goodness, our hearts are full of gratitude at the enormous outpouring of love and service you have blessed us with. As I have sat in my living room in the early morning hours these past few days, I have been overcome with feelings of deep, deep joy – joy in the work that has been done to take care of our home, joy in the relief this has given my dear overworked husband, joy, most of all, in our relationships with so many wonderful families. Thank you for teaching us the power of community. Thank you for showing us the impact a group of people committed to doing good can have. Thank you for taking us into your hearts and truly loving our little family.

To EVERY SINGLE person who came and helped and to those of you who sent your love, but were unable to attend, thank you. Thank you. Thank you. There are not sufficient words to express the feelings of my heart. Please know that you did far more than clean and fix a home. You helped repair a broken soul and infuse our entire family with hope.

To Kat and Jess – thank you for helping me get through the day. I couldn’t have done it without you. Truly. I needed to look in your eyes and see that I was safe…over and over and over.

To the Lamoreaux Family – Thank you for being willing to pray for our family and listen to the answers God sent you about what we needed. Thank you for insisting this project go forward even when I threw a fit and vetoed it. Thank you for having hearts full of joyful service.

Thank you for Being The Good In The World – you have taught me, once again, to Believe There is Good in the World…so much!

And as if their service wasn’t enough, they filled up my soul with love notes!

Tracy,

We want to say thank you so much for letting us come. You have touched all of our lives in such a deep way. Without you there would not be such a strong community willing to join together to do such amazing service.

I know it was probably so hard to let us come. In fact, when I got home that night and saw the whirlwind that we had left our own home in that morning, I thought “I would DIE if everyone came here!”. But I want to honestly say that I was impressed with your home considering the amazingly difficult health challenges you have had for so long.

Sure, there were some cleaning and repairs that needed to be done, but nothing out of the ordinary needs of a home. I straightened books on bookshelves and admired the great literature you have in your home. I picked up toys and my heart warmed as I observed the wholesome games and toys that you have thoughtfully chosen for your children’s development. We sorted through dress ups and I thought of the times I’ve come to your home and seen your children dressed up and enjoying their imaginative play. I vacuumed up some popcorn and thought of the times I’ve been with you enjoying popcorn and lots of laughter and happiness. I thought of how much time Courtney has spent with Keziah in your home and all the crazy fun memories they have. I remembered passover dinners, and classes and other great times you’ve orchestrated. And even without all the huge projects going on, you have a way of loving those around you, finding what their talents and strengths are, and lifting all of us.

We love you and appreciate the day we got to spend serving your family!
Tasha

Today was amazing! None of it would have happened if you hadn’t spent the last 16-ish years building an amazing community of wholehearted compassionate powerful people. I am eternally grateful to be part of this community and to call you Friend. Bob-Tasha Lamoreaux thank you for organizing this! I keep spontaneously bursting into tears. My heart is so full.

Kat

We love, love, love you and your family Tracy! Thank you for impacting our lives and the lives of our children…and for allowing us to give back a little to you.

Keri

You are so sweet. It was our pleasure. Could not think of a better way to spend a Saturday afternoon. Honestly! You’re such an amazing family.

Dustin

An amazing group of people that all love you, Tracy because you make a difference in the lives of others. What a great way to give back. You guys are all awesome! Wish I could have helped out too because you have made a difference in my life as well as my children’s lives.

Michelle

Thanks for being so Christlike to us! Thanks for setting the example you do, and for allowing us to try to return a little of your service! You and your hubby deserve this and so much more! We love you! So many people love you!!!

Bonnie

I cried reading about all of the good that has been returned to you this last week. I cried because I couldn’t be there personally (but I sent Madison and Alex). How I wanted to be there to DO something in return for all that your family has done for us. I love the comments that Tasha made and I feel the EXACT same way. All the deep joy you felt is because in a way, you do so much for everyone else. You are just getting what you deserve: JOY in boundless amounts :) I am so glad that Richard was able to get some extra hands to help fix up your home because I know he works so hard for your family. What a blessing to have so many that love all of you and put their love to work. That is true wealth, the love of family and friends.

I love you, and thank you for all the times you spent driving my Madison with you to the traditional Conference trips, etc. You are a light and an example to me and my family that only gets brighter.

Jana

It has now been several weeks since this day of love and the feeling of being wrapped up in God’s arms is still with me. I am in the midst of trying to heal a pretty bad injury to my inguinal ligament and feel pretty discouraged by the condition of my physical body, but the light that filled my soul on this day of awesomeness has stayed with me and raised my spirits more than I can adequately describe.

p.s. That post title? Yes, it is from Wicked…because I knew you (all of the YOUS), I have been changed for good. Thank you. Thank you. Thank you.

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communing from bed

Nov 9, 2014 by

Another Sabbath spent in bed. Yesterday I had a really bad seizure/passing out/muscle cramping episode at the end of our monthly baptisms…so I am in bed today trying to recover.

Communing with Father through genealogy, good music, and looking at my trees out the window is good, but also a bit lonely. I wish I was at church with my family, partaking of the sacrament and singing praises. I wish I was shaking hands and smiling and chatting with my fellow church-goers.

Creating my own Sabbath day holiness has been a journey. I have had to sort out what I need to do to connect with God deep down in my little toes…because I have learned that while I might survive missing church, I cannot survive the week with any degree of peace, hope, and let’s face it, sanity, if I have a Sabbath without connection with the Father.

So I sing and ponder and pray and reflect and stare at the sky and write and thank. The Spirit washes over me and through me and in me and I remember who I am and who He is and what this life is all about.

It is enough. It is not what I want, but it is enough.

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time for some big-girl panties

Nov 6, 2014 by

My Jessica is moving.

Today.

The past many days have been spent packing her up and snuggling in bed laughing and crying as we savor these last few moments together. We have not had a good night’s rest for over a week.

Out of nowhere, my eyes fill up with tears and they run down my cheeks.

Oh, this is hard.

I give my heart solace by convincing myself she will be back. She will return to Idaho and her dream of a little farm. We will eat 3 minute chocolate cakes at midnight once again. But, oh, the pain of not having her right down the road is breaking my heart.

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learning to receive

Oct 17, 2014 by

My dear friend Tasha has organized an epic “Pour Out Piles of Love on Tracy” party for tomorrow. I wasn’t supposed to know about it, but she messed up and BCCed me on an email (Which is a VERY fortunate mistake because I probably would have gone into full freak-out mode if my house was invaded early on a Saturday morning and I had no foreknowledge of it at all!). I heartily tried to veto the whole shebang, but no one listens to me anymore and the party is going on with or without my approval.

After thinking about it for a few days, I have decided to focus on the love and be grateful for this outpouring of service…a gazillion people are going to show up tomorrow morning to deep clean our home, repair lots of broken things, work in our decrepit yard, and pour out love everywhere they look. Oh my. It is so scary to let people into my home and see my messes, my piles, my crap I cannot decide what to do with. I am feeling quite vulnerable already with these bad dreams and sleepless nights and this experience is sending my vulnerable feelings sky high.

Part of me thinks, “Even though I have been injured for over 2 1/2 years and even though I spend lots of time in bed and even though I can’t move quickly, stay on my feet for very long, squat down at all, or carry heavy loads, I SHOULD BE ABLE TO TAKE CARE OF EVERYTHING IN THIS HOUSE!” And then I go to this train of thinking, “I mean for goodness sakes I have two teenage daughters and even though they have busy school schedules, jobs, symphony, running, friends, and lots of other things, the three of us should be able to do this.” And then I go to “I have a husband who can fix/build/make pretty much anything, he should have this house in tip top shape.” But the truth is I can’t. We can’t. We have been living in survival mode since at least spring of 2011 when we found the lump in my breast. My husband works long hours six days a week. He is only here about six Saturdays a year and all the repairs and projects for the whole year get squished into those six Saturdays.

Kat says karma is coming my way and I need to soak it all in and remember all the wonderful times I have had pulling such events off for others who need help. So I am trying really hard to release the shame and welcome the love. I have decided to move forward into tomorrow with a grateful heart. There is so much good in this world. So, so much. And tomorrow is my day to learn to receive…and smile while people surround me with service.

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7670 days since we said yes

Oct 15, 2014 by

Twenty-one years since we knelt at the altar in covenant making.

Fierce loyalty.

Tender love.

Breathtaking kisses.

Safe snuggles.

Hilarious inside jokes.

Patience.

Patience.

Patience.

That look in his eye that tells me he adores me.

When I first looked at him back on the evening of June 4, 1993, my spirit was overcome by the feeling of stability and security. I have been safe in his arms ever since. He loves me just the way I am and he anchors me to all the good things. Don’t you think this song was written for us?

Anchor
by Mindy Gledhill

When all the world is spinning round
Like a red balloon way up in the clouds
and my feet will not stay on the ground
You anchor me back down

I am nearly world renowned
As a restless soul who always skips town
But I look for you to come around
And anchor me back down

There are those who think that I’m strange
They would box me up, and tell me to change
But you hold me close and softly say
That you wouldn’t have me any other way

When people pin me as a clown
You behave as though I’m wearing a crown
When I’m lost I feel so very found
When you anchor me back down

There are those who think that I’m strange
They would box me up, and tell me to change
But you hold me close and softly say
That you wouldn’t have me any other way

When all the world is spinning round
Like a red balloon way up in the clouds
and my feet will not stay on the ground
You anchor me back down

Oh, how I love this man God has yoked me to. Thank you honey…for everything.

p.s. I had to edit the post title because I forgot about the leap years. Five more days.

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stuffing

Oct 13, 2014 by

The day these bad dreams started was the day I stuffed down a comment about being molested. It seems to be a pattern in my life: I don’t say things that will cause others to feel guilt or feel hurt. I protect other’s feelings by not speaking up.

Now don’t get me wrong, I CAN and DO say hurtful things. Far too often thoughtless comments burst out of mouth and I end up wounding someone deeply. But it seems to be the pattern of my life that I excuse other people’s behavior by not saying “You have hurt me!

I have been trying to figure out why I do this for many weeks now. The counselor I had an appointment with tried to get to the bottom of it and decided it is because I don’t value myself enough to say something.

That didn’t sit right with me. It could be true, but it doesn’t feel true. Richard and I have talked and talked and talked about it and it doesn’t feel true to him either. I think that is often the reason people don’t speak up, but it just doesn’t seem true for me. I do value myself. I have great self-esteem and believe I can do pretty much anything I set my mind to. I am not at all the picture of a victim.

And yet, I often stuff my feelings deep down inside and refuse to tell people how horribly wrong their behavior has been or how terribly they have hurt me. I even have one person in my life who continues to abuse me in many ways and I allow it to happen. It infuriates me that I will not stand up and put an end to it.

And see, see what I just did. I won’t name names. I won’t call this person out into the open.

WHY??????????????????????

I do feel lighter than I did several weeks ago and I am really truly smiling and feeling joy again, but the pain is still here. I woke up on Saturday night with ANOTHER kidney infection…the third since this all started. And Sunday night was another sleepless night. I prayed and prayed and prayed for sleep to come, but instead I lay there tossing and turning all night long with numb arms (something must have moved out of place in my upper back and is causing my arms/hands to be numb) and wide-awake mind. And now it is Monday night, nearly midnight, and I can’t sleep again.

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light

Oct 9, 2014 by

A swirling ball of emotions and experiences have filled my past many weeks. Moments of joy, celebrations of birthdays, exquisite beauty, peaceful solitude, and quiet moments of pondering have all been present along with gut-wrenching pain, soul-searing heartache, fear, grief, and misery and then to top it all off, a bout of pneumonia that sapped nearly all my strength.

It has been a bit surreal – as if I am living in several different realities all at the same time – and I haven’t known how to best navigate these waters.

Some things have helped. Morning scripture study and prayer with our family has added grounding to my day. Evening read-aloud time and family prayer has been the whip cream to top off our days with moments of unity before bed. Snuggling with my little ones has helped me remember who I am and what I am all about: family. Last week’s priesthood blessings were filled with words of truth and hope for everyone and definitely a balm of healing for me. Attending General Conference this weekend gave me the same sort of strength my mountains give me – fortitude to persevere from deep within the earth. All of it has helped. All of it has helped me feel God’s love.

Last week sometime Jessica sent me some lovely thoughts from Dickens that helped me sort out my conflicting feelings of deep gratitude for the life I have now and the deep, deep pain I feel from being molested, my father leaving us and physically abandoning me, and my mother being raped and subsequently being emotionally unavailable while she healed from her own pain. Part of me has felt like if I were really grateful, I wouldn’t have the pain. But this quote by Dickens helped me understand it is okay to be in both places at once.

“The deep remembrance of the sense I had of being utterly neglected and hopeless, of the shame I felt in my position; of the misery it was to my young heart … cannot be written. My whole nature was so penetrated with grief and humiliation of such considerations, that even now, famous and caressed and happy, I often forgot in my dreams that I have a dear wife and children; even that I am a man; and wander desolately back to that time in my life.”

Just because my heart is hurting does not mean I am not grateful. It simply means I am hurting.

At some point in all of this blackness, I read the words to a favorite song from back in my teenage years. It got me through many a dark night then and I thought it might get me through some of these dark nights now.

Hold On, The Light Will Come
by Michael McClean

The message of this moment is so clear

And as certain as the rising of the sun
When your world is filled with darkness, doubt or fear
Just hold on, hold on
The light will come

Everyone who’s ever tried and failed

Stands much taller when the victory’s won
And those who’ve been in darkness for awhile
Kneel much longer when
The light has come

It’s a message everyone of us must learn

That the answers never come without a fight
And when it seems you’ve struggled far too long
Just hold on, hold on
There will be light

Hold on, hold on, the light will come

Hold on, hold on, the light will come

If you feel trapped inside a never ending night

If you’ve forgotten how it feels to feel the light
If you’re half crazy thinking you’re the only one
Who’s afraid the light will never really come
Just hold on, hold on the light will come

The message of this moment is so clear

And as certain as the rising of the sun
When your world is filled with darkness, doubt or fear
Just hold on, hold on the light will come

After weeks of heartache and pain, I decided I needed to talk to my Stake President. I love this man and I sensed his wise, Christ-centered counsel was exactly what I needed. He is being released in a few weeks and I wanted to receive a priesthood blessing along with his wisdom and love. We met on Tuesday for several hours and God poured out light and truth and clarity. Those few hours will be one of the treasures of my life.

President Poston helped me understand that this pain is okay – feeling it does not mean I am lacking faith, it just comes. He told me there will be periods of time in my life when the pain from my childhood will flare up. It just will. How I respond to the pain is what is important. He counseled me to let it come and keep trusting God. He said we don’t trust the outcome, we trust the Giver – know He is with me, even in the pain. Don’t trust Him only when he takes the pain away, trust him in the pain, trust him always.

Such beautiful, beautiful thoughts.

He shared D&C 100:15:

Therefore, let your hearts be comforted; for all things shall work together for good to those that walk uprightly.

He told me that I do walk uprightly and to take this scripture at face value – that ALL things shall work together for my good. Well, I can argue till I am blue in the face that I don’t walk uprightly. I lose my patience, I am critical, I am quick to anger. Most of all, I am full of prideful independence that I will solve my problems and then go to God. But this dear man testified as a servant of God, holder of priesthood keys, and a judge in Israel, that I do walk uprightly and all things shall work together for my good.

He counseled me to go to bed with faith in Christ and heart full of hope for a good night’s rest. If the bad dreams come, plead for light. Look heavenward and plead for relief and trust it to come. He asked me to start the day in prayer asking for light and heaven’s help to surround me, then get to the business of the day. Then end the day in prayer talking to Father about my day and asking for light and rest to be with me through the night. He promised me the light will come.

And then he gave Richard a beautiful, sacred, profound blessing that filled him with peace and hope and assurance that Father is very aware of him.

And then they both laid their hands on my head and the light of God poured into my soul.

The words are far too sacred to share here on the interwebs, but oh my, they are powerful and beautiful and full of healing. This I know: God knows me, loves me, is with me. I have a great work to do in this life and the circumstances of my life are not an accident, they are a gift that enables me to do the work God has called me to do.

I feel lighter than I have in many weeks. Thank you Father. Thank you Jesus.

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miss kez turns 14

Oct 6, 2014 by

miss kez turns 14

Miss Keziah celebrated her 14th birthday in style. She is pretty tired of our simple birthday celebrations and decided to take matters into her own hands. She spent all afternoon and evening on Thursday blowing up hundreds of balloons and hanging up streamers. Then she insisted we all wake up at 12:36 to open her presents at the exact time she was born. Although we didn’t get much sleep that night it was totally worth it to make her dreams come true.

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This girl is such a delight to me. Since the night she was born, she has been passionate and full of vigor and vim. When she was little, her temper tantrums were intense and long-lasting and often more than we thought we could handle, but her fierce determination has grown into a great work ethic and we as parents just need to support her in helping her achieve her long list of goals.

She is a huge Michael Vey fan and since the new book just came out, we gave her book four, Hunt For Jade Dragon.

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She has been asking for a new CTR ring so Richard made her a giant cardboard ring.

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She also loves highlighters, so a new pack of fancy retractable ones showed up for her birthday.

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Her birthday book this year is Girls Who Choose God which is so fabulous I need to do a whole post about its awesomeness, but let me tell you, it is so, so lovely and everyone needs to buy a gazillion copies.

Girls-Who-Choose-God.F

Keziah is a list maker extreme – She has entire notebooks of packing lists, song lists, book lists, future dog name lists (for her 47 dogs she is going to eventually have), she even makes lists of lists – so when I saw this list making notebook at TJ Maxx a few months ago I snatched it up to save for her birthday.

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But her big present, the present she has been hoping and praying for for years is a second dog. We have told her at least a thousand times, “We are a ONE dog family!” but she has continued to beg and plead and search for another dog. Well, about a year ago, I started looking for a dog for her. It had to be a well-behaved dog that all of us, even the non-dog-lovers, could live with and not lose our minds. It had to be young enough to be Keziah’s running partner, but not so young that we would have to endure an endless puppy/toddler stage of accidents, jumping, chewing, barking, etc.

A few weeks ago we found what we hoped was the right dog. She was down in Utah so we made arrangements to pick her up on our trip down for General Conference. Last night we picked Harley up from her adorable family and made the long and squishy drive home with our new family member. Keziah has renamed her Charley (from her list of future dog names!) and is thrilled to pieces to have a dog that loves to play fetch, go running, and has plenty of energy to keep up with her.

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Sadie wasn’t so sure she liked this new addition when she met her in the middle of the night. But we worked with both of them and by this afternoon they were getting along quite well. A trip to the lake for a family walk helped Sadie accept her as one of the clan.

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Charley pulls on her leash too much for Miss Annesley’s muscle strength, but Sadie is a perfect running partner for her.

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Charley loves the water and it seems will swim for sticks all day.

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We hope this first walk together is the first of many happy days at the lake.

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Happy, happy birthday Miss Kez!

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here i am

Oct 2, 2014 by

A warm smile of gratitude graced my face as I went to bed last night. For I was given a beautiful gift.

I was given the gift of myself. Yesterday for the first time in many weeks, I felt the passion and joy of being Miss Tracy. I smiled real smiles of happiness and shouted real words of excitement and felt real energy moving within me.

I can use exclamation points and have them mean excitement and not flaming rage.

Glorious!

I had been wondering all week about having a book discussion at my home when I was feeling so dark and dismal. I didn’t see how it could possibly be enjoyable for anyone and frankly didn’t see how I could discuss a book with such heavy thoughts weighing down on me.

But I woke up on Wednesday feeling centered and loving and loved and me. Through the grace of God I was able to be calm and patient when Kez was in freak out mode as she got ready for her Shakespeare presentation. I didn’t yell at her or lose my patience – I was able to speak calm, soul-filling words, and help her get there on time and with all the stuff she needed. When people started coming into iFAMILY, I was able to connect with them instead of wanting to run away and hide from everyone. I was able to listen and love and care about others.

And then at our book discussion last night, I was alive and excited and it was such a gift to my soul to discover that I am still in here somewhere. After so many weeks of black sludge permeating my being, I had started to wonder if the bright and bouncy Tracy would ever be found again.

I will probably have some more black sludge days – I need to have more as I know I am not done processing the anger and hurt and violation – but now, finally, I can have some days of light and love as well.

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some victories

Sep 30, 2014 by

It’s high time we focus on some victories, wouldn’t you say? Even in the sludge of what I am experiencing right now, I can see the goodness around me, the blessings of my life, and for that I am grateful. If I was in this sleep-deprived, grief-laden state without being able to see the good, I think I would go completely bonkers.

  • Blythe is working! Wahoo!
  • We get to go to General Conference this weekend! Big Wahoo!
  • Keziah is running cross-country and loving it. Yesterday she clocked her fastest time on a 400m at practice and came back to the car full of confidence and satisfaction.
  • Even though I was sorely tempted, I did not take up residence in the land-of-everything-is-awful-and-Richard-needs-a-new-wife. I thought about buying a ticket, but I refused to put out the money and did not board that train. And it was even in the midst of my progesterone dropping! This is huge folks. Huge. I would have fully expected that in the midst of these sleepless nights and awful dreams, I would have jumped on board that train, but through the grace of God, I was able to stay here and hold onto his (and His) love.
  • This case of pneumonia is doing much, much better! In fact, I think I will try to ride the Elliptigo for a few minutes this afternoon and see how my lungs handle it.
  • After years of Keziah begging with every cell of her body for another dog, we have finally decided to get her a cutie pie named Harley. Kez will promptly rename her Charley and we will all live happily ever after as a two-dog family. Right? We pick her up on Saturday when we head to Utah for General Conference.

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  • I am cooking meals for my family…not every night, but more than I have in months. Kat’s lentil tacos and this delicious fried rice recipe (I don’t even put chicken in it and it is still so, so delicious! I think the sesame oil must be the secret ingredient I have been missing all these years.) have become once-a-week standbys.
  • Fisher and I finished reading Iron Thunder today. It is a story about the Monitor vs. Merrimac battle in the Civil War. He is doing a presentation about the battle in a few weeks at iFAMILY. He also just finished listening to G.A. Henty’s book With Lee in Virginia.
  • Speaking of listening to books, that birthday boy is listening up a storm on his new birthday CD player. We looked for weeks for just the right one. We wanted it to play CDs, MP3s, and cassettes if possible. We finally found the right one and as a bonus it has an aux-in line as well. When the rest of us get to be too much for this quiet, peace-loving guy, he can go to his room, build with his legos, and listen to fabulous stories.
  • Keziah’s 14th birthday is on Friday. My little fireball is growing up. She is louder than ever (and if you knew her in person, you would know that is saying A LOT) and though we all tend to breathe a sigh of relief when she is gone for two hours each morning to seminary, we wouldn’t change her hilarious, spirited, hard-working, obnoxious, goal setting (and achieving) self for anything.
  • We have consistently held 6:00 a.m. scripture study for 6 weeks. Oh my goodness, never in a million years did I think I would be able to say those words. We are rocking this! Every single morning I lie in bed and decide I am NOT going to get up and every single morning I do anyway and by the time I get out to the front room, I am grateful.
  • My room is cleaner than it has been for a long, long time.
  • Fisher has earned a couple of dates (one for finishing his set of reading books and one for filling up his Happy Jar with Warm Fuzzies) with me and Annesley has almost earned one, so we are going to get to spend some lovely one-on-one time together in the next few weeks.
  • Even this grief has good points. It helps me see the stark contrasts of life and cling to the beautiful and precious even more fiercely. It has reminded me why I do what I do…why I mother and love and work to strengthen families.

Life is good. This may not last, but at least today I can see the light and can feel a real, genuine smile on my face.

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blessings from on high

Sep 30, 2014 by

Family home evening last night was just the balm of Gilead I needed – Richard gave us all Father’s Blessings.

And the light came.

And my heart-pain eased.

And I felt the love of my Father, my Savior, my ancestors, and my husband.

And I remembered the feeling of joy.

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who am i and what am i doing in this life?

Sep 29, 2014 by

I’m living in several different realities right now. It is hard and painful and incredibly confusing to my psyche.

In one, I feel like a volcano ready to erupt with a massive lava flow of rage that will cover the earth.

In another, I feel so fragile I could break into a million pieces.

Then in my little homeschooling mother realm, I am going through the motions. Teaching reading, doing math problems, exploring the Civil War with Fisher, working on handwriting with Annes. Playing games with everyone. Learning and loving and encouraging, trying my best to keep this realm safe and happy and calm for my children.

In my wife realm, I am hurting. Hurting so very deeply. It is the only safe place for me to hurt this deeply. But I want to stop hurting and stop feeling and stop this madness, so I find myself pushing him away. Trying to get him not to care and stop being so incredibly kind.

In my public realm, I am calmer than perhaps I have ever been. My bubbliness has evaporated. But I am still acting. It’s not like I can walk around screaming at people or bawling my eyes out. So I try to smile, try to do all the public niceties that are expected of people in a civilized society. And it hurts. I was almost paralyzed on Saturday before the General Women’s Meeting. I DID NOT want to go and see all those people. I couldn’t face them and put a smile on my face. But I finally went and loved the messages. But I didn’t mingle, it was too much, I think, humanity, for my state of being. The thought of going grocery shopping or running errands and being with people is painful. I don’t want to see anyone right now. I want to curl up in a ball and disappear.

I slide from realm to realm and emotion to emotion and never get to stay in one realm long enough to actually make progress.

I cannot go on like this. I think I may need to go live in a treehouse for a month and let all the tears out once and for all, then perhaps I can come home and function again.

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love makes the world go round

Sep 27, 2014 by

In the midst of all these bad dreams, pneumonia-laden lungs and a body full of faulty connective tissue, I am a mother.

A mother of four beautiful children who need me to be emotionally present in their lives.

We are trying our darnedest to create an emotionally safe home for these precious ones God has blessed us with. Lots of times I fail. I resort to anger and impatience and the poor coping mechanisms I was raised with.

And many times I choose love. And forgiveness. And patience.

And snuggles.

Always the snuggles bring us back to center.

Early in the morning, before anyone else is moving, Fisher creeps into my room with a book and with his sweet blue eyes asks if I will read to him, “just one chapter before school?”

Late at night, after everyone is done moving, Annesley will sneak into my arms for just one more hug and kiss before bed.

And my heart swells with oceans of gratitude that I, the person who never wanted to be a mother, the person who entered marriage as such a broken, angry soul, the person who believed my life was far more important than a child’s life, get to hold these children in my arms and nurture them with my heart.

I get to mother.

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annesleyisms

Sep 26, 2014 by

Today on the way to gym, Annesley burst out with the declaration, “Mama, you are a hard woman.” I could barely contain my giggling because she sounded so happy about it and yet, being a hard woman doesn’t seem like something positive. This is how our conversation proceeded.

Annesley: Mama, you are HARD woman.

Me: What? A hard woman?

Annesley: Yes! I mean you started iFAMILY. You started gym. You are a hard worker.

Me: Oh! I see what you mean.

Annesley: That took a lot of effort! I mean look at how hard you have worked to create iFAMILY.

Me: Hmmm, why do you think I worked that hard?

Annesley: To help children learn and have fun?

Me: Yep. And because I love you. So, so much.

Annesley: Yes! And you wanted your kids to get exercise. And you too. But you don’t really get much anymore, do you?

I guess our many talks on effort, process, and determination (instead of results) have made it into her psyche.

Tonight for prayer she said, “Dear Heavenly Father, thank thee that we can be together as a family. Please help us to be guided. Please bless my mama to be healed. And my grandma. And please help us be kind and do what we need to do. And please help my cough. In the name of Jesus Christ, Amen.

Ahhh, so precious. I love this girl. So, so, so very much. She cracks me up, reaches the deep places of my heart with her happy, joyful spirit, and reminds me of the good things in life.

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1st day of counseling

Sep 25, 2014 by

Eeeek.

Today is the day I go to counseling.

I am nervous.

This morning I tried to convince myself I didn’t need to go because I have slept the past few nights with no bad dreams.

What will I say to him?

What if I pass out?

What if this is all a big mistake?

Oh my goodness, I hope I am courageous enough to take this step into healing.

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seven weeks of sleeplessness

Sep 23, 2014 by

The last seven weeks I have been dealing with many sleepless nights and gut-wrenching dreams stemming from abuse situations in my childhood. At times I have felt so fragile, it has seemed possible that if someone touched me, I would shatter in a million pieces. At other times, I have felt strong and able to face this new layer of necessary healing with faith and courage. At other times, I have been simply exhausted and unable to even think.

It has been tough.

I have learned a lot about myself and a lot about healing.

But not enough yet. There is still much for me to learn.

I have learned that quiet, peaceful moments with my children have come to mean immensely more than I ever knew they could. These precious moments of love and trust and connection are full of life-giving-light, they are sacred.

I have learned (or relearned) that Richard’s arms erase the fear and pain stored deep down in my soul.

I have learned how incredibly painful it is to go through life, doing all the things that life requires, while behaving on the outside like I am not dying on the inside.

I have learned that I absolutely cannot separate my physical body from my emotional body. I know this, yet it still surprises me. My emotions are screaming to come out and it seems they scream at me best through my physical body. Remember my 10th miscarriage hair debacle? My lungs are full of fluid – pneumonia has got the best of me, and the emotion for the lungs is grieving. I can think of no other emotion for what my spirit is experiencing than grief. I have been in bed since Wednesday night, coughing and hacking and gagging on the piles of mucous that need to come out of me. In the midst of the coughing and hacking, my kidneys woke me up screaming in pain several nights in a row. The emotion for kidneys is fear. I try to honor my spirit, to listen my emotions, to be in tune with myself, and (laughably given my many failures in this department) I actually think I do a really good job at it…and yet, my body pretty much never gets sick from a germ. Everyone around me can be sick and I won’t get sick. I get sick from my emotions. When I was pregnant with Fisher I made my whole body sick because I was so afraid of having a boy who would grow up and hurt others. No amount of talking or crying or gnashing my teeth could heal me. God was the only one then and He is the only one now who has the power to heal me.

However, I am doing some things to help the healing process. I am trying to be really open and honest…to say “I am not okay” when I’m really not, when I’m really suffering. I am spending time in deep, heartfelt prayer. I am looking at little girls and seeing how small and innocent they are and allowing myself to let go of the responsibility I have felt for so long for somehow not preventing these older, stronger, intimidating boys from touching me. I am crying. A lot. I have never cried this much in my life. Tears pour out of me nearly every day…and I am letting them flow.

There was a time in my life from about age 12 to age 22 where I did not cry. I would not allow myself to “lose control” like that. I held it all in and became super girl, getting straight A’s, being a teaching assistant for the math teacher and the principal, running every organization I was part of, working at our family’s grocery store, befriending the elderly people of our town, taking care of my young siblings, protecting my little brother from my stepfather’s rage, and keeping a smile on my face from sun-up to sundown. I actually believed I was okay. I didn’t know I was a hot mess on the inside. I was so effective in stuffing all the pain deep down inside that I didn’t even know it was there.

But sometimes it would explode out of me. Like when a Young Women’s leader at church would give a lesson about listening to our (future) husbands. Angry words would burst out of me (as I had decided that not only would I never, ever have a husband, but if by some terrible, unfortunate accident I ended up with one, I would never, ever be bossed by him.) about how men are not the boss of us and why should we listen to them! All they do is hurt us! And I would run out of the room and collapse in the bathroom or gym and every once in a while a few minutes of tears would come.

But then, I would calm down and put on my happy face and go home and take care of everything. And believe I was okay.

After we were married, I fell apart. Really fell apart. Richard was so safe and stable, I no longer had to hold it all in. Together we worked really hard on healing…he had the much harder road here because I was nearly impossible to live with. One day I would be loving and warm and safe. The next day (or minute!) I would be a raging lunatic begging for a divorce or stomping out of the house or demanding he leave me alone forever. It was so, so hard. But he loved me. Deeply loved me, scabs and scars and rage and all. And slowly, through his great love and patience with me, the bloody wounds healed and my heart calmed down to a much more even keel.

From the time we were engaged, we have talked about my abuse. We have dealt with it again and again and again. I have let God heal it again and again and again (and He has.) I have seen counselors, Bishops, and others. Up until a few months ago, I would say I was healed. And yet, here is another layer to deal with. Another stage of healing that we get to traverse together. And we are. We are talking and holding and praying and loving and helping this black slime come out of me.

We have decided it is time for me to see a counselor again, it has been about 19 years since my last set of counseling appointments. We are praying these appointments help me sort out the dreams and hasten the healing power of the atonement. I know God can heal me.

I feel a need to be fairly open about my journey on this current path. Since the morning I woke up with the awful, awful dream over a week ago, I have felt the need to write, to share, to bless. I think abuse is often spoken of in whispers or downright prohibited from being spoken of at all. There are a lot of people hurting in this world and my journey may help one of them know they are not alone in being abused or full of rage or feeling crazy, that abuse does not sentence you to a life of misery, that God can and does and will heal your deepest sorrows, and that it is okay to talk about.

So, if you see me, know I am hurting, know I am fragile, know I am doing everything I can to make it through each day with love and trust and hope in my heart. And be gentle.

And I will try to stay in a place of real.

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together on a quiet morn

Sep 22, 2014 by

Early morning scriptures.

Snuggling in bed with my little ones.

Reading about Harriet Tubman’s escape with Fisher.

Doing math with Annesley.

Stillness in my trees after a night of gentle raindrops hitting my roof.

Quiet.

Calm.

Learning.

Routine.

Gentle excitement in their eyes.

Just what I needed today.

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